OPTimising engagement in routine collection of Electronic Patient-Reported Outcomes (OPT-ePRO)

Principal investigator: 
Dr Sabine Van Der Veer
Organisation: 
Centre for Health Informatics, University of Manchester
Status: 
Active
Summary: 

Electronic patient-reported outcome (ePROs) are digitally collected outcomes that reflect the impact of illness and treatment as assessed directly by patients, such as symptoms or side effects. Routinely collecting and using ePROs as part of clinical care may improve patients’ care, experiences and outcomes, but it still largely unknown how best to implement ePROs in clinical practice more widely in order to harness these potential benefits. The OPTimising engagement in routine collection of Electronic Patient-Reported Outcomes (OPT-ePRO) study aims to address this knowledge gap, using renal centres in the UK as the exemplar context.

Outputs

We expect the findings from the project to inform how routine ePRO collection can be integrated into renal services. To facilitate this, the project will produce a roadmap to inform a strategy for rolling out routine renal ePRO collection at a national level. The roadmap will present recommendations for national stakeholder groups and renal service providers on how to scale up renal ePRO collection across centres in the UK.  

In addition, there will be a report that outlines factors that influence digital access and ePRO engagement for older CKD patients and those from deprived areas. This report will include signposting to existing support resources or initiatives which could serve as models of engagement for ePRO programmes. The report will also identify novel challenges requiring further research.

Co-investigators: 
Fergus Caskey, Ken Farrington, Sarah Knowles, Michael Rees

Guidelines

NICE accredited clinical practice guidelines 

Available here

23rd Annual Report

Analyses about the care provided to patients at UK renal centres.

Read the report

UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report