Papers

This page lists publications where data from the UK Renal Registry or RaDaR were used, as well as publications that were supported by the UK Kidney Association.

Title Year Authors Journal Database
The European Renal Association – European Dialysis and Transplant Association (ERA-EDTA) Registry Annual Report 2015: a summary 2018 Anneke Kramer, Maria Pippias, Marlies Noordzij, Vianda S Stel, Nikolaos Afentakis, Patrice M Ambühl, Anton M Andrusev, Emma Arcos Fuster, Federico E Arribas Monzón, Anders Åsberg, Myftar Barbullushi, Marjolein Bonthuis, Fergus J Caskey, Pablo Castro de la Nuez, Harijs Cernevskis, Jean-Marin des Grottes, Liliana Garneata, Eliezer Golan, Marc H Hemmelder, Kyriakos Ioannou, Faical Jarraya, Mykola Kolesnyk, Kirill Komissarov, Mathilde Lassalle, Fernando Macario, Beatriz Mahillo-Duran, Angel L Martín de Francisco, Runolfur Palsson, Ülle Pechter, Halima Resic, Boleslaw Rutkowski, Carmen Santiuste de Pablos, Nurhan Seyahi, Sanja Simic Ogrizovic, María F Slon Roblero, Viera Spustova, Olivera Stojceva-Taneva, Jamie Traynor, Ziad A Massy, Kitty J Jager Clinical Kidney Journal UKRR, ERA-EDTA
'How long have I got doctor?' The development and validation of a new prognostic model 2015 Retha Steenkamp, Fergus J Caskey Kidney International UKRR
2012 ERA-EDTA Registry Annual Report: cautious optimism on outcomes, concern about persistent inequalities and data black-outs 2015 Liliana Gonzalez-Espinoza, Alberto Ortiz Clinical Kidney Journal UKRR, ERA-EDTA
A breakthrough series collaborative to increase patient participation with hemodialysis tasks: A stepped wedge cluster randomised controlled trial 2021 James Fotheringham, Tania Barnes, Louese Dunn, Sonia Lee, Steven Ariss, Tracey Young, Stephen J Walters, Paul Laboi, Andy Henwood, Rachel Gair, Martin Wilkie PLoS ONE
A comparison of predialysis estimated glomerular filtration rate in the US, Canada, France, Australia, and the UK between 2005 and 2015 2019 Steven J Rosansky, Mae Thamer, Fergus Caskey, Cécile Couchoud, Stephen P McDonald, Louise Moist Kidney International UKRR
A narrative systematic review of randomised controlled trials that compare cannulation techniques for haemodialysis 2022 Catherine A Fielding, Amanda Hadfield, Kelly White, Dan Waters, Cathryn James, Heather Buchanan, Richard J Fluck, Nicholas M Selby Journal of Vascular Access
A programme to spread eGFR graph surveillance for the early identification, support and treatment of people with progressive chronic kidney disease (ASSIST-CKD): protocol for the stepped wedge implementation and evaluation of an intervention to reduce lat 2017 Hugh Gallagher, Shona Methven, Anna Casula, Nicola Thomas, Charles R V Tomson, Fergus J Caskey, Tracey Rose, Stephen J Walters, David Kennedy, Anne Dawnay, Martin Cassidy, Richard Fluck, Hugh C Rayner, Michael Nation BMC Nephrology UKRR
A role for OCRL in glomerular function and disease 2019 Preston R et al. Pediatr Nephrol RaDaR
Access to kidney transplantation in European adults aged 75-84 years and related outcomes: an analysis of the European Renal Association-European Dialysis and Transplant Association Registry 2018 Maria Pippias, Vianda S Stel, Anneke Kramer, Jose M Abad Diez, Nuria Aresté-Fosalba, Carole Ayav, Jadranka Buturovic, Fergus J Caskey, Frederic Collart, Cécile Couchoud, Johan De Meester, James G Heaf, Ilkka Helanterä, Marc H Hemmelder, Myrto Kostopoulou, Marlies Noordzij, Julio Pascual, Runolfur Palsson, Anna Varberg Reisaeter, Jamie P Traynor, Ziad Massy, Kitty J Jager Transplant International
Access to Transplantation and Transplant Outcome Measures (ATTOM): study protocol of a UK wide, in-depth, prospective cohort analysis 2016 Gabriel C Oniscu, Rommel Ravanan, Diana Wu, Andrea Gibbons, Bernadette Li, Charles Tomson, John L Forsythe, Clare Bradley, John Cairns, Christopher Dudley, Christopher J E Watson, Eleanor M Bolton, Heather Draper, Matthew Robb, Lisa Bradbury, Rishi Pruthi, Wendy Metcalfe, Damian Fogarty, Paul Roderick, J Andrew Bradley; ATTOM Investigators BMJ Open
Acute kidney injury identification for pharmacoepidemiologic studies: Use of laboratory electronic acute kidney injury alerts versus electronic health records in Hospital Episode Statistics 2021 Manuela Savino, Lucy Plumb, Anna Casula,Katharine Evans, Esther Wong, Nitin Kolhe, James F. Medcalf, Dorothea Nitsch Pharmacoepidemiology and Drug Safety UKRR
Advanced chronic kidney disease among UK children 2022 Lucy Plumb, Winnie Magadi, Anna Casula, Ben C Reynolds, Mairead Convery, Shuman Haq, Shivaram Hegde, Andrew Lunn, Michal Malina, Henry Morgan, Mordi Muorah, Kay Tyerman, Manish D Sinha, Dean Wallace, Carol Inward, Stephen Marks, Dorothea Nitsch, James Medcalf Archives of disease in childhood UKRR
Alport syndrome natural history from the RaDaR registry: Associations with gene, variant type and sex 2023 Katie Wong, David Pitcher, Shiguang Liu, Julie Lin, Ali Hariri, Alex Mercer, Bruce Hendry, Andrew Neil Turner, Daniel Gale Nephrology, Dialysis, Transplantation RaDaR, Alport Syndrome
An international patient-centred study of retroperitoneal fibrosis 2022 R Dattani, T D Barwick, G El Wardany, N Gibbons, J C Mason, P Morgan, C D Pusey, F W K Tam, J A P Tomlinson; RaDaR Rare Disease Group (RDG) QJM RaDaR, Retroperitoneal Fibrosis
Analysis of data from the ERA-EDTA Registry indicates that conventional treatments for chronic kidney disease do not reduce the need for renal replacement therapy in autosomal dominant polycystic kidney disease 2014 Edwin M Spithoven, Anneke Kramer, Esther Meijer, Bjarne Orskov, Christoph Wanner, Fergus Caskey, Frederic Collart, Patrik Finne, Damian G Fogarty, Jaap W Groothoff, Andries Hoitsma, Marie-Béatrice Nogier, Maurizio Postorino, Pietro Ravani, Oscar Zurriaga, Kitty J Jager, Ron T Gansevoort; ERA-EDTA Registry; EuroCYST Consortium; WGIKD; EuroCYST Consortium; WGIKD Kidney International
Are electronic health records ready for clinical trial use? 2020 Lucy Plumb, Dorothea Nitsch Nature Reviews Nephrology
Assessing Consensus Between UK Renal Clinicians on Listing for Kidney Transplantation: A Modified Delphi Study 2018 Sarah Tonkin-Crine, Rishi Pruthi, Dominic M Taylor, Geraldine M Leydon, Melania Calestani, Gabriel C Oniscu, J Andrew Bradley, Charles R Tomson, Clare Bradley, Christopher Dudley, Christopher J E Watson, Heather Draper, Rachel J Johnson, Wendy Metcalfe, Damian G Fogarty, Rommel Ravanan, Paul Roderick Transplantation Direct
Assessing the Impact of Prophylactic Eculizumab on Renal Graft Survival in Atypical Hemolytic Uremic Syndrome 2023 Emily K Glover, Kate Smith-Jackson, Vicky Brocklebank, Valerie Wilson, Patrick R Walsh, Emma K Montgomery, Edwin K S Wong, Sally Johnson, Michal Malina, David Kavanagh, Neil S Sheerin; UK aHUS Transplant Consortium Transplantation RaDaR, aHUS
Assessing the impact of screening, early identification and intervention programmes for chronic kidney disease: protocol for a scoping review 2021 Ikechi G Okpechi, Fergus J Caskey, Abduzhappar Gaipov, Elliot K Tannor, Laura N Hamonic, Gloria Ashuntantang, Jo-Ann Donner, Ana Figueiredo, Reiko Inagi, Magdalena Madero, Charu Malik, Monica Moorthy, Roberto Pecoits-Filho, Vladimir Tesar, Adeera Levin, Vivekanand Jha BMJ Open
Association between timing of dialysis initiation and clinical outcomes in the paediatric population: an ESPN/ERA-EDTA Registry study 2019 Preka E et al. Nephrol Dial Transplant UKRR
Associations between deprivation, geographic location, and access to pediatric kidney care in the United Kingdom 2021 Lucy Plumb, Manish Sinha, Anna Casula, Carol Inward, Stephen Marks, Fergus Caskey, Yoav Ben-Shlomo Clinical Journal of the American Society of Nephrology UKRR
Associations of longitudinal height and weight with clinical outcomes in pediatric kidney replacement therapy: results from the ESPN/ERA Registry 2023 Marjolein Bonthuis, Sevcan A Bakkaloglu, Enrico Vidal, Sergey Baiko, Fiona Braddon, Carmela Errichiello, Telma Francisco, Dieter Haffner, Annie Lahoche, Beata Leszczyńska, Jurate Masalkiene, Jelena Stojanovic, Maria S Molchanova, George Reusz, Adela Rodriguez Barba, Alejandra Rosales, Sanja Tegeltija, Elisa Ylinen, Galia Zlatanova, Jérôme Harambat, Kitty J Jager Pediatric Nephrology
Associations with age and glomerular filtration rate in a referred population with chronic kidney disease: Methods and baseline data from a UK multicentre cohort study (NURTuRE-CKD) 2023 Maarten W Taal, Bethany Lucas, Paul Roderick, Paul Cockwell, David C Wheeler, Moin A Saleem, Simon D S Fraser, Rosamonde E Banks, Tim Johnson, Lorna J Hale, Uwe Andag, Philipp Skroblin, Michaela Bayerlova, Robert Unwin, Nicolas Vuilleumier, Rodolphe Dusaulcy, Fiona Robertson, Elizabeth Colby, David Pitcher, Fiona Braddon, Melissa Benavente, Elaine Davies, Michael Nation, Philip A Kalra Nephrology, Dialysis, Transplantation UKRR
Associations with kidney transplant survival and eGFR decline in children and young adults in the United Kingdom: a retrospective cohort study 2020 Hamilton A et al. BMC Nephrol UKRR
Associations with wellbeing and medication adherence in young adults receiving kidney replacement therapy 2018 Alexander Hamilton; Fergus Caskey; Anna Casula; Carol Inward; Yoav Ben-Shlomo Clinical Journal of the American Society of Nephrology UKRR
Attainment of guideline targets in EURODOPPS haemodialysis patients: are differences related to a country's healthcare expenditure and nephrologist workforce? 2017 Sophie Liabeuf, Karlijn J Van Stralen, Fergus Caskey, Francesca Tentori, Ronald L Pisoni, Ayesha Sajjad, Kitty J Jager, Ziad A Massy Nephrology Dialysis Transplantation
Availability, coverage, and scope of health information systems for kidney care across world countries and regions 2021 Emily J See, Aminu K Bello, Adeera Levin, Meaghan Lunney, Mohamed A Osman, Feng Ye, Gloria E Ashuntantang, Ezequiel Bellorin-Font, Mohammed Benghanem Gharbi, Sara Davison, Mohammad Ghnaimat, Paul Harden, Htay Htay, Vivekanand Jha, Kamyar Kalantar-Zadeh, Peter G Kerr, Scott Klarenbach, Csaba P Kovesdy, Valerie Luyckx, Brendon Neuen, Donal O'Donoghue, Shahrzad Ossareh, Jeffrey Perl, Harun Ur Rashid, Eric Rondeau, Saad Syed, Laura Sola, Irma Tchokhonelidze, Vladimir Tesar, Kriang Tungsanga, Rumeyza Turan Kazancioglu, Angela Yee-Moon Wang, Chih-Wei Yang, Alexander Zemchenkov, Ming-Hui Zhao, Kitty J Jager, Fergus Caskey, Vlado Perkovic, Kailash K Jindal, Ikechi G Okpechi, Marcello Tonelli, John Feehally, David C Harris, David W Johnson Nephrology Dialysis Transplantation
BK polyomavirus practice patterns in the UK – results from a 2018 survey of UK renal centres 2020 Pyart R et al. Br J Renal Med RaDaR, BK Nephropathy
Burnout and long COVID among the UK nephrology workforce: results from a national survey investigating the impact of COVID-19 on working lives 2021 Haresh Selvaskandan, Ailish Nimmo, Manuela Savino, Sarah Afuwape, Sarah Brand, Matthew Graham-Brown, James Medcalf, Paul Cockwell, Hannah Beckwith Clinical Kidney Journal
C3 Glomerulopathy and Related Disorders in Children: Etiology-Phenotype Correlation and Outcomes 2021 Edwin K. S. Wong; Kevin J. Marchbank; Hannah Lomax-Browne; Isabel Y. Pappworth; Harriet Denton; Katie Cooke; Sophie Ward; Amy Claire McLoughlin; Grant Richardson; Valerie Wilson; Claire L. Harris; B. Paul Morgan; Svetlana Hakobyan; Paul McAlinden; Daniel P. Gale; Heather Maxwell; Martin Christian; Roger Malcomson; Timothy H. J. Goodship; Stephen D. Marks; Matthew C. Pickering; David Kavanagh; H. Terence Cook; Sally A. Johnson Clinical journal of the American Society of Nephrology RaDaR, MPGN, DDD & C3 Glomerulopathy
Can we routinely measure patient involvement in treatment decision-making in chronic kidney care? A service evaluation in 27 renal units in the UK 2016 Marie-Anne Durand, Hilary L Bekker, Anna Casula, Robert Elias, Alastair Ferraro, Amy Lloyd, Sabine N van der Veer, Wendy Metcalfe, Andrew Mooney, Richard G Thomson, Charles R V Tomson Clinical Kidney Journal
Capturing and monitoring global differences in untreated and treated end-stage kidney disease, kidney replacement therapy modality, and outcomes 2020 Roberto Pecoits-Filho, Ikechi G Okpechi, Jo-Ann Donner, David C H Harris, Harith M Aljubori, Aminu K Bello, Ezequiel Bellorin-Font, Fergus J Caskey, Allan Collins, Alfonso M Cueto-Manzano, John Feehally, Bak Leong Goh, Kitty J Jager, Masaomi Nangaku, Muhibur Rahman, Manisha Sahay, Abdulkarim Saleh, Laura Sola, Rumeyza Turan Kazancioglu, Rachael C Walker, Robert Walker, Qiang Yao, Xueqing Yu, Ming-Hui Zhao, David W Johnson Kidney International Supplements
Causes of Renal Allograft Failure in the UK: Trends in UK Renal Registry and National Health Service Blood and Transplant Data From 2000 to 2013 2019 Burton H et al. Nephrol Dial Transplant UKRR
Centre variation in mortality following post-hospitalization acute kidney injury: analysis of a large national cohort 2022 Javeria Peracha, David Pitcher, Shalini Santhakumaran, Retha Steenkamp, James Fotheringham, Jamie Day, James F Medcalf, Dorothea Nitsch, Graham W Lipkin, William S McKane Nephrology Dialysis Transplantation UKRR
Changes in clinical indicators related to the transition from dialysis to kidney transplantation-data from the ERA-EDTA Registry 2019 Pichaya Tantiyavarong, Anneke Kramer, James G Heaf, Patrik Finne, Anders Åsberg, Aleix Cases, Fergus J Caskey, Ziad A Massy, Kitty J Jager, Marlies Noordzij Clinical Kidney Journal UKRR, ERA-EDTA
Characteristics and Outcomes of Patients With Systemic Sclerosis (Scleroderma) Requiring Renal Replacement Therapy in Europe: Results From the ERA-EDTA Registry 2019 Zdenka Hruskova, Maria Pippias, Vianda S Stel, Jose M Abad-Díez, Manuel Benítez Sánchez, Fergus J Caskey, Frederic Collart, Johan De Meester, Patrik Finne, James G Heaf, Angela Magaz, Runolfur Palsson, Anna Varberg Reisæter, Alan D Salama, Mårten Segelmark, Jamie P Traynor, Ziad A Massy, Kitty J Jager, Vladimir Tesar American Journal of Kidney Diseases
Chronic renal failure in kidney transplant recipients. Do they receive optimum care?: Data from the UK Renal Registry 2007 D Ansell, U P Udayaraj, R Steenkamp, C R K Dudley American Journal of Transplantation UKRR
Clinical and Genetic Analysis of Patients with Cystinuria in the United Kingdom 2015 Hannah L Rhodes, Laura Yarram-Smith, Sarah J Rice, Ayla Tabaksert, Noel Edwards, Alice Hartley, Mark N Woodward, Sarah L Smithson, Charles Tomson, Gavin I Welsh, Margaret Williams, David T Thwaites, John A Sayer, Richard J M Coward Clinical Journal of the American Society of Nephrology RaDaR, Cystinuria
Clinical Assessment of Dialysis Recovery Time and Symptom Burden: Impact of Switching Hemodialysis Therapy Mode 2021 Stephanie Bolton, Rachel Gair, Lars-Göran Nilsson, Michael Matthews, Louanne Stewart, Natasha McCullagh Patient Related Outcome Measures
Clinical practice guideline on pregnancy and renal disease 2019 Kate Wiles, Lucy Chappell, Katherine Clark, Louise Elman, Matt Hall, Liz Lightstone, Germin Mohamed, Durba Mukherjee, Catherine Nelson-Piercy, Philip Webster, Rebecca Whybrow, Kate Bramham BMC Nephrology
Clinical Predictors of Long-term Outcomes in C3 Glomerulopathy and Immune-Complex Membranoproliferative Glomerulonephritis within the UK RaDaR Registry 2024 Sherry Masoud, Katie Wong, Lewis Downward, David Pitcher, Nicholas J.A. Webb, Clare Proudfoot, RaDaR Consortium, Edwin K.S. Wong, Daniel P. Gale medRxiv RaDaR, MPGN, DDD & C3 Glomerulopathy
Comparative Effectiveness of Dynamic Treatment Strategies for Medication Use and Dosage: Emulating a Target Trial Using Observational Data 2023 Kate Birnie; Charles Tomson; Fergus Caskey; Yoav Ben-Shlomo; Dorothea Nitsch; Anna Casula; Eleanor Murray; Jonathan Sterne Epidemiology UKRR
Comparative effectiveness of two- and three-dose COVID-19 vaccination schedules involving AZD1222 and BNT162b2 in people with kidney disease: a linked OpenSAFELY and UK Renal Registry cohort study 2023 The OpenSAFELY Collaborative, Edward P.K. Parker, Elsie M.F. Horne, William J. Hulme, John Tazare, Bang Zheng, Shalini Santhakumaran, Retha Steenkamp, Dorothea Nitsch et al. The Lancet Regional Health UKRR
Comparison of Outcomes of In-Centre Haemodialysis Patients between the 1st and 2nd COVID-19 Outbreak in England, Wales, and Northern Ireland: A UK Renal Registry Analysis 2022 Manuela Savino, Shalini Santhakumaran, Christine S.M. Currie, Bhakti S.S. Onggo, Katharine M. Evans, James F. Medcalf, Dorothea Nitsch, Retha Steenkamp Nephron UKRR
Continually improving standards of care: The UK Renal Registry as a translational public health tool 2018 Lucy Plumb; Alexander Hamilton; Carol Inward; Yoav Ben-Shlomo; Fergus Caskey Pediatric Nephrology UKRR
Contributions of treatment centre and patient characteristics to patient-reported experience of haemodialysis: a national cross-sectional study 2021 Hawkins J et al. BMJ Open UKRR
COVID-19 in children with chronic kidney disease: findings from the UK Renal Registry 2020 Plumb L et al. Arch Dis Child UKRR
Current chronic kidney disease practice patterns in the UK: a national survey 2006 A Ahmad, P Roderick, M Ward, Retha Steenkamp, R Burden, D O'Donoghue, D Ansell, T Feest QJM
Data from the ERA-EDTA Registry were examined for trends in excess mortality in European adults on kidney replacement therapy 2020 Rianne Boenink, Vianda S Stel, Bård E Waldum-Grevbo, Frederic Collart, Julia Kerschbaum, James G Heaf, Johan de Meester, Patrik Finne, Sergio A García-Marcos, Marie Evans, Patrice M Ambühl, Mustafa Arici, Carole Ayav, Retha Steenkamp, Aleix Cases, Jamie P Traynor, Runolfur Palsson, Carmine Zoccali, Ziad A Massy, Kitty J Jager, Anneke Kramer Kidney International UKRR, ERA-EDTA
Decision-making for people with dementia and advanced kidney disease: a secondary qualitative analysis of interviews from the Conservative Kidney Management Assessment of Practice Patterns Study 2018 Jemima Scott, Amanda Owen-Smith, Sarah Tonkin-Crine, Hugh Rayner, Paul Roderick, Ikumi Okamoto, Geraldine Leydon, Fergus Caskey, Shona Methven BMJ Open
Decreasing incidence of dialysis in older patients in The Netherlands as compared with other European countries: an international perspective 2023 Mathijs van Oevelen, Alferso C Abrahams, Tiny Hoekstra, Marc A G J ten Dam, Anneke Kramer, Kitty J Jager, Gurbey Ocak, Marjolijn van Buren, Willem Jan W Bos Clinical Kidney Journal UKRR, ERA-EDTA
Defining measures of kidney function in observational studies using routine health care data: methodological and reporting considerations 2023 Juan Jesus Carrero, Edouard L Fu, Søren V Vestergaard, Simon Kok Jensen, Alessandro Gasparini, Viyaasan Mahalingasivam, Samira Bell, Henrik Birn, Uffe Heide-Jørgensen, Catherine M Clase, Faye Cleary, Josef Coresh, Friedo W Dekker, Ron T Gansevoort, Brenda R Hemmelgarn, Kitty J Jager, Tazeen H Jafar, Csaba P Kovesdy, Manish M Sood, Bénédicte Stengel, Christian F Christiansen, Masao Iwagami, Dorothea Nitsch Kidney International
Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK 2020 Sabine N Van Der Veer, Angelo Ercia, Fergus J Caskey, Ken Farrington, Francine Jury, Michael Rees, Tim Whitlock, Sarah Knowles Studies in Health Technology and Informatics
Disparities in treatment and outcome of kidney replacement therapy in children with comorbidities: an ESPN/ERA Registry study 2023 Raphael Schild, Simeon Dupont, Jérôme Harambat, Enrico Vidal, Ayşe Balat, Csaba Bereczki, Beata Bieniaś, Per Brandström, Francoise Broux, Silvia Consolo, Ivana Gojkovic, Jaap W Groothoff, Kristine Hommel, Holger Hubmann, Fiona E M Braddon, Tatiana E Pankratenko, Fotios Papachristou, Lucy A Plumb, Ludmila Podracka, Sylwester Prokurat, Anna Bjerre, Carolina Cordinhã, Juuso Tainio, Enkelejda Shkurti, Giuseppina Spartà, Karel Vondrak, Kitty J Jager, Jun Oh, Marjolein Bonthuis Clinical Kidney Journal ERA-EDTA
Do outcomes for patients with hospital-acquired Acute Kidney Injury (H-AKI) vary across specialties in England? 2023 Winnie Magadi, Javeria Peracha, William S McKane, Manuela Savino, Fiona Braddon, Retha Steenkamp & Dorothea Nitsch BMC Nephrology UKRR
Do routine hospital data accurately record comorbidity in advanced kidney disease populations? A record linkage cohort study 2021 Ailish Nimmo, Retha Steenkamp, Rommel Ravanan, Dominic Taylor BMC Nephrology
Early invasive treatment for acute coronary syndrome in patients with chronic kidney disease: do we know what we're doing? 2015 Catriona Shaw, Claire C Sharpe Future Cardiology
Early Requirement for RRT in Children at Presentation in the United Kingdom: Association with Transplantation and Survival 2016 Rishi Pruthi, Anna Casula, Carol Inward, Paul Roderick, Manish D Sinha, British Association for Paediatric Nephrology Clinical Journal of the American Society of Nephrology UKRR
Effect of change in renal replacement therapy modality on laboratory variables: a cohort study from the UK Renal Registry 2009 Raman Rao, David Ansell, Julie A Gilg, Simon J Davies, Edmund J Lamb, Charlie R V Tomson Nephrology Dialysis Transplant UKRR
Epidemiology of childhood acute kidney injury in England using e-alerts 2023 Lucy Plumb, Anna Casula, Manish D Sinha, Carol D Inward, Stephen D Marks, James Medcalf, Dorothea Nitsch Clinical Kidney Journal UKRR
Epidemiology of patients in England and Wales with autosomal dominant polycystic kidney disease and end-stage renal failure 2014 Catriona Shaw, Roslyn J Simms, David Pitcher, Richard Sandford Nephrology, Dialysis, Transplant UKRR
Erythropoeitin dose variation in different facilities in different countries and its relationship to drug resistance 2003 Roger Greenwood; Claudio Ronco; Fiorella Gastaldon; Alessandra Brendolan; Peter Homel; Len Usvyat; Lenore Bruno; Mary Carter; Nathan Levin Kidney international UKRR
Erythropoiesis-stimulating agent dosing, haemoglobin and ferritin levels in UK haemodialysis patients 2005-13 2017 Kate Birnie, Fergus Caskey, Yoav Ben-Shlomo, Jonathan A C Sterne, Julie Gilg, Dorothea Nitsch, Charles Tomson Nephrology, Dialysis, Transplantation UKRR
Ethnicity, socioeconomic status, and attainment of clinical practice guideline standards in dialysis patients in the United kingdom 2009 Udaya P Udayaraj, Yoav Ben-Shlomo, Paul Roderick, Retha Steenkamp, David Ansell, Charles R V Tomson, Fergus J Caskey Clinical Journal of the American Society of Nephrology UKRR
Exploring the differences in epidemiology of treated ESRD between Germany and England and Wales 2006 Fergus J Caskey, Hans-Jürgen Schober-Halstenberg, Paul J Roderick, Günter Edenharter, David Ansell, Ulrich Frei, Terry G Feest American Journal of Kidney Diseases UKRR
Exploring the relevance of NUP93 variants in steroid-resistant nephrotic syndrome using next generation sequencing and a fly kidney model 2022 Agnieszka Bierzynska, Katherine Bull, Sara Miellet, Philip Dean, Chris Neal, Elizabeth Colby, Hugh J McCarthy, Shivaram Hegde, Manish D Sinha, Carmen Bugarin Diz, Kathleen Stirrups, Karyn Megy, Rutendo Mapeta, Chris Penkett, Sarah Marsh, Natalie Forrester, Maryam Afzal, Hannah Stark, Nihr BioResource, Maggie Williams, Gavin I Welsh, Ania B Koziell, Paul S Hartley, Moin A Saleem Pediatric Nephrology RaDaR, Nephrotic Syndrome
Factors associated with COVID-19 vaccine uptake in people with kidney disease: an OpenSAFELY cohort study 2023 The OpenSAFELY Collaborative, Edward PK Parker, John Tazare, William J Hulme, Christopher Bates, Elsie MF Horne, Fiona Loud, Susan Lyon, Viyaasan Mahalingasivam , Amir Mehrkar, Shalini Santhakumaran, Retha Steenkamp, Elizabeth J Williamson, Dorothea Nitsch, Laurie A Tomlinson, et al. BMJ Open UKRR
G33(P) Overview of rare renal diseases at a paediatric renal centre through the national registry of rare kidney diseases (radar) in the united kingdom 2018 L Kerecuk, M Kokocinska, S Parkes, J Kainth, M Dillon Archives of Disease in Childhood RaDaR
Genomic and clinical profiling of a national nephrotic syndrome cohort advocates a precision medicine approach to disease management 2017 Agnieszka Bierzynska; Hugh McCarthy; Katrina Soderquest; Ethan Sen; Elizabeth Colby; Wen Ding; Marwa Nabhan; Larissa Kerecuk; Shivram Hegde; David Hughes; Stephen Marks; Sally Feather; Caroline Jones; Nicholas Webb; Milos Ognjanovic; Martin Christian; Rodney Gilbert; Manish Sinha; Graham Lord; Michael Simpson; Ania Koziell; Gavin Welsh; Moin Saleem Kidney international RaDaR, Nephrotic Syndrome
Glycated hemoglobin and risk of death in diabetic patients treated with hemodialysis: a meta-analysis 2014 Christopher J Hill, Alexander P Maxwell, Christopher R Cardwell, Barry I Freedman, Marcello Tonelli, Masanori Emoto, Masaaki Inaba, Yasuaki Hayashino, Shunichi Fukuhara, Tomonari Okada, Christiane Drechsler, Christoph Wanner, Anna Casula, Amanda I Adler, Claudia Lamina, Florian Kronenberg, Elani Streja, Kamyar Kalantar-Zadeh, Damian G Fogarty American Journal of Kidney Diseases
Growth patterns after kidney transplantation in European children over the past 25 years: an ESPN/ERA-EDTA Registry Study 2019 Bonthuis M et al. Transplantation UKRR
Guideline attainment and morbidity/mortality rates in a large cohort of European haemodialysis patients (EURODOPPS) 2019 Sophie Liabeuf, Ayesha Sajjad, Anneke Kramer, Brian Bieber, Keith McCullough, Ron Pisoni, Fergus Caskey, Christian Combe, Bruce M Robinson, Kitty J Jager, Ziad A Massy Nephrology Dialysis Transplantation
Heparin versus citrate anticoagulation for continuous renal replacement therapy in intensive care: the RRAM observational study 2022 Doug W Gould, James Doidge, M Zia Sadique, Mark Borthwick, Robert Hatch, Fergus J Caskey, Lui Forni, Robert F Lawrence, Clare MacEwen, Marlies Ostermann, Paul R Mouncey, David A Harrison, Kathryn M Rowan, J Duncan Young, Peter J Watkinson Health Technology Assessment UKRR
High-throughput sequencing contributes to the diagnosis of tubulopathies and familial hypercalcemia hypocalciuria in adults 2019 Marguerite Hureaux et al Kidney International, RaDaR, Tubulopathy
How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting 2015 Kate Breckenridge, Hillary L Bekker, Elizabeth Gibbons, Sabine N van der Veer, Denise Abbott, Serge Briançon, Ron Cullen, Liliana Garneata, Kitty J Jager, Kjersti Lønning, Wendy Metcalfe, Rachael L Morton, Fliss E M Murtagh, Karl Prutz, Susan Robertson, Ivan Rychlik, Steffan Schon, Linda Sharp, Elodie Speyer, Francesca Tentori, Fergus J Caskey Nephrology Dialysis Transplantation
IgA nephropathy: driving innovation with a rare renal disease registry 2017 Haresh Selvaskandan, Melanie Dillon, Jonathan Barratt Journal of Kidney Care RaDaR, IgA Nephropathy
Impact of an Early Invasive Strategy versus Conservative Strategy for Unstable Angina and Non-ST Elevation Acute Coronary Syndrome in Patients with Chronic Kidney Disease: A Systematic Review 2016 Catriona Shaw, Dorothea Nitsch, Jasmine Lee, Damian Fogarty, Claire C Sharpe PLoS ONE
Impact of the COVID-19 pandemic on services for patients with chronic kidney disease: findings of a national survey of UK kidney centres 2023 Lucy Mackintosh, Amanda Busby, Ken Farrington, Janine Hawkins, Sarah Afuwape, Paul Bristow, Maria Da Silva-Gane, Natalie Hall, Tess Harris, Joanna Hudson, Sam Norton, Paula Ormandy, Christina J Pearce, Shalini Santhakumaran, Shivani Sharma, Sivakumar Sridharan, Retha Steenkamp, Julie Slevin, David Wellsted, Joseph Chilcot BMC Nephrology
Impact of the COVID-19 Pandemic on Training, Morale and Well-Being Among the UK Renal Workforce 2021 Hannah Beckwith, Ailish Nimmo, Manuela Savino, Haresh Selvaskandan, Matthew Graham-Brown, James Medcalf, Paul Cockwell; UK Renal SpR Club and Renal Association Kidney International Reports
Incorporating patient-reported symptom assessments into routine care for people with chronic kidney disease 2017 Sabine N van der Veer, Giovanni Aresi, Rachel Gair Clinical Kidney Journal
Increasing access to integrated ESKD care as part of universal health coverage 2019 David C H Harris, Simon J Davies, Fredric O Finkelstein, Vivekanand Jha, Jo-Ann Donner, Georgi Abraham, Aminu K Bello, Fergus J Caskey, Guillermo Garcia Garcia, Paul Harden, Brenda Hemmelgarn, David W Johnson, Nathan W Levin, Valerie A Luyckx, Dominique E Martin, Mignon I McCulloch, Mohammed Rafique Moosa, Philip J O'Connell, Ikechi G Okpechi, Roberto Pecoits Filho, Kamal D Shah, Laura Sola, Charles Swanepoel, Marcello Tonelli, Ahmed Twahir, Wim van Biesen, Cherian Varghese, Chih-Wei Yang, Carlos Zuniga; Working Groups of the International Society of Nephrology’s 2nd Global Kidney Health Summit Kidney International
Increasing numbers and improved overall survival of patients on kidney replacement therapy over the last decade in Europe: an ERA Registry study 2023 Jilske A Huijben, Anneke Kramer, Julia Kerschbaum, Johan de Meester, Frederic Collart, Olga Lucía Rodríguez Arévalo, Jaakko Helve, Mathilde Lassalle, Runolfur Palsson, Marc ten Dam, Anna Casula, Shona Methven, Alberto Ortiz, Pietro Manuel Ferraro, Mårten Segelmark, Pablo Ucio Mingo, Mustafa Arici, Anna Varberg Reisæter, Maria Stendahl, Vianda S Stel, Kitty J Jager Nephrology Dialysis Transplant UKRR, ERA-EDTA
Increasing trends in hemodialysis and living donor kidney transplantation for children and young people in the United Kingdom 2022 Nadeesha Lakmal Mudalige, Kristi Sun, Lucy Plumb, Anna Casula, Katharine M Evans, Carol Inward, Stephen D Marks Pediatric Transplantation UKRR
Inpatient coronary angiography and revascularisation following non-ST-elevation acute coronary syndrome in patients with renal impairment: a cohort study using the Myocardial Ischaemia National Audit Project 2014 Catriona Shaw, Dorothea Nitsch, Retha Steenkamp, Cornelia Junghans, Sapna Shah, Donal O'Donoghue, Damian Fogarty, Clive Weston, Claire C Sharpe PLoS ONE
International collaborative efforts to establish kidney health surveillance systems 2020 Hole B et al. Kidney Int UKRR
International comparison and time trends of first kidney transplant recipient characteristics across Europe: an ERA Registry study 2023 Rianne Boenink, Anneke Kramer, Sherry Masoud, Alberto Rodríguez-Benot, Jaakko Helve, Claus Bistrup, Mårten M Segelmark, Olga L Rodríguez Arévalo, Julia Kerschbaum, Aiko P J de Vries, Torbjörn Lundgren, Samira Bell, Marta Crespo, Søren S Sørensen, Pietro Manuel Ferraro, Miha Arnol, Sevcan A Bakkaloglu, Laurent Weekers, Anna Varberg Reisæter, Damir Rebić, Alberto Ortiz, Kitty J Jager, Vianda S Stel Nephrology Dialysis Transplantation UKRR, ERA-EDTA
Kidney transplant outcomes from older deceased donors: a paired kidney analysis by the European Renal Association-European Dialysis and Transplant Association Registry 2018 Maria Pippias, Kitty J Jager, Fergus Caskey, Anna Casula, Helen Erlandsson, Patrik Finne, James Heaf, Georg Heinze, Andries Hoitsma, Reinhard Kramar, Marko Lempinen, Angela Magaz, Karsten Midtvedt, Lisa L Mumford, Julio Pascual, Karl G Prütz, Søren S Sørensen, Jamie P Traynor, Ziad A Massy, Rommel Ravanan, Vianda S Stel Transplant International
Kidney Transplantation in Small Children: Association Between Body Weight and Outcome-A Report From the ESPN/ERA-EDTA Registry 2022 Michael Boehm, Marjolein Bonthuis, Christoph Aufricht, Nina Battelino, Anna Bjerre, Vidar O Edvardsson, Maria Herthelius, Holger Hubmann, Timo Jahnukainen, Huib de Jong, Guido F Laube, Francesca Mattozzi, Elena A Molchanova, Marina Muñoz, Aytul Noyan, Lars Pape, Nikoleta Printza, George Reusz, Gwenaelle Roussey, Jacek Rubik, Brankica Spasojevic'-Dimitrijeva, Tomas Seeman, Nicholas Ware, Enrico Vidal, Jérôme Harambat, Kitty J Jager, Jaap Groothoff Transplantation UKRR, ERA-EDTA
Large-Scale Whole-Genome Sequencing Reveals the Genetic Architecture of Primary Membranoproliferative GN and C3 Glomerulopathy 2020 Adam P et al. J Amer Soc Nephrol RaDaR
Lifetime risk of renal replacement therapy in Europe: a population-based study using data from the ERA-EDTA Registry 2017 Jan A J G van den Brand, Maria Pippias, Vianda S Stel, Fergus J Caskey, Frederic Collart, Partik Finne, James Heaf, Jean-Philippe Jais, Reinhard Kramar, Ziad A Massy, Johan De Meester, Jamie P Traynor, Anna Varberg Reisæter, Jack F M Wetzels, Kitty J Jager Nephrology Dialysis Transplantation
Long-term graft outcomes and patient survival are lower posttransplant in patients with a primary renal diagnosis of glomerulonephritis 2016 Rishi Pruthi, Mark McClure, Anna Casula, Paul J Roderick, Damian Fogarty, Mark Harber, Rommel Ravanan Kidney International UKRR
Long-term Kidney Transplant Outcomes in Primary Glomerulonephritis: Analysis From the ERA-EDTA Registry 2016 Maria Pippias, Vianda S Stel, Nuria Aresté-Fosalba, Cécile Couchoud, Gema Fernandez-Fresnedo, Patrik Finne, James G Heaf, Andries Hoitsma, Johan De Meester, Runolfur Pálsson, Pietro Ravani, Mårten Segelmark, Jamie P Traynor, Anna V Reisæter, Fergus J Caskey, Kitty J Jager Transplantation
Long-Term Outcomes in IgA Nephropathy 2023 David Pitcher, Fiona Braddon, Bruce Hendry, Alex Mercer, Kate Osmaston, Moin A Saleem, Retha Steenkamp, Katie Wong, Neil Turner, Kaijun Wang, Daniel Gale, Jonathan Barratt Clinical Journal of the American Society of Nephrology RaDaR, IgA Nephropathy
Longitudinal changes in body mass index following renal transplantation in UK children 2014 Lucy A Plumb, David Pitcher, Yincent Tse, Julian P Shield, Carol Inward, Manish D Sinha; British Association for Paediatric Nephrology Nephrology Dialysis Transplantation
Management of anaemia in United Kingdom renal units: a report from the UK Renal Registry 2000 C Burton, D Ansell, H Taylor, E Dunn, T Feest Nephrology, Dialysis, Transplantation UKRR
Measuring patients' experience with renal services in the UK: development and validation of the Kidney PREM 2022 Janine Hawkins, David Wellsted, Claire Corps, Richard Fluck, Rachel Gair, Natalie Hall, Amanda Busby, Beth Rider, Ken Farrington, Shivani Sharma, Sabine N van der Veer Nephrology Dialysis Transplantation
Measuring senescence rates of patients with end-stage renal disease while accounting for population heterogeneity: an analysis of data from the ERA-EDTA Registry 2016 Jacob J E Koopman, Anneke Kramer, Diana van Heemst, Anders Åsberg, Jean-Baptiste Beuscart, Jadranka Buturović-Ponikvar, Frederic Collart, Cécile G Couchoud, Patrik Finne, James G Heaf, Ziad A Massy, Johan M J De Meester, Runolfur Palsson, Retha Steenkamp, Jamie P Traynor, Kitty J Jager, Hein Putter Annals of Epidemiology
MO265: Patients with Alport Syndrome from the Radar Registry: A Natural History Study 2022 Shiguang Liu, Julie Lin, David Pitcher, Andrew Neil Turner, Daniel Gale Nephrology Dialysis Transplantation RaDaR, Alport Syndrome
Molecular stratification of idiopathic nephrotic syndrome 2019 Saleem M Nat Rev Nephrol RaDaR
Mortality Trends After Transfer From Peritoneal Dialysis to Hemodialysis 2022 Annie-Claire Nadeau-Fredette, Nidhi Sukul, Mark Lambie, Jeffrey Perl, Simon Davies, David W Johnson, Bruce Robinson, Wim Van Biesen, Anneke Kramer, Kitty J Jager, Rajiv Saran, Ronald Pisoni, Christopher T Chan; INTEGRATED Study Group Kidney International Reports UKRR, ERA-EDTA
National recommendations to standardise acute kidney injury detection and alerting 2023 Rachel Marrington, Anna L Barton, Alexandra Yates, William McKane, Nicholas M Selby, Jonathan S Murray, James F Medcalf, Finlay MacKenzie, Martin Myers Annals of Clinical Biochemistry
Next generation sequencing (NGS) in the UK steroid resistant nephrotic syndrome (SRNS) study reveals complex genetic heterogeneity 2012 HJ McCarthy, A Bierzynska, M Wherlock, GI Welsh, MA Saleem Archives of Disease in Childhood RaDaR
Outcomes from the Northeast England cohort of autosomal dominant polycystic kidney disease (ADPKD) patients on tolvaptan 2022 Eleftherios Gkekas, Tsz Yau Tiffany Tang, Alan Green, Han Davidson, Rachel Fraser, John A Sayer, Shalabh Srivastava Frontiers in Nephrology RaDaR, ARPKD & NPHP
Outcomes in SRNS (FSGS) patients in the UK RaDaR Idiopathic Nephrotic Syndrome registry and their relationship with time-averaged proteinuria 2023 David Pitcher, Jonathan Barratt, Fiona Braddon, Bruce Hendry, Alex Mercer, Kate Osmaston, Margaretha Steenkamp, Andrew Neil Turner, Daniel Gale, Moin A Saleem Nephrology Dialysis Transplantation RaDaR, Nephrotic Syndrome
Outcomes of patients with COVID-19 on kidney replacement therapy: a comparison among modalities in England 2021 Manuela Savino, Shalini Santhakumaran, Katharine Evans, Retha Steenkamp, Fran Benoy-Deeney, James Medcalf, Dorothea Nitsch Clinical Kidney Journal UKRR
Patient activation and its association with symptom burden and quality of life across the spectrum of chronic kidney disease stages in England 2022 Winnie Magadi, Courtney J. Lightfoot, Katherine E. Memory, Shalini Santhakumaran, Sabine N. van der Veer, Nicola Thomas, Rachel Gair and Alice C. Smith BMC Nephrology UKRR
Patient attitudes towards kidney transplant listing: Qualitative findings from the ATTOM study 2014 Melania Calestani, Sarah Tonkin-Crine, Rishi Pruthi, Geraldine Leydon, Rommel Ravanan, J Andrew Bradley, Charles R Tomson, John L Forsythe, Gabriel C Oniscu, Clare Bradley, John Cairns, Christopher Dudley, Christopher Watson, Heather Draper, Rachel J Johnson, Wendy Metcalfe, Damian G Fogarty, Paul Roderick; ATTOM Investigators Nephrology Dialysis Transplantation
Patients with diabetic nephropathy on renal replacement therapy in England and Wales 2007 D Nitsch, R Burden, R Steenkamp, D Ansell, C Byrne, F Caskey, P Roderick, T Feest QJM UKRR
Performance of an easy-to-use prediction model for renal patient survival: an external validation study using data from the ERA-EDTA Registry 2018 Hemke A et al. Nephrol Dial Transplant UKRR
POS-422 ADPEDKD: A global online platform to explore the childhood phenotype of autosomal dominant polycystic kidney disease 2021 A. DACHY, S. De Rechter, L.M. Guay-Woodford, A.J. Mallett, T. Harris, D. Böckenhauer, F. Schaefer, M.C. Liebau, D. Mekahli Kidney International Reports RaDaR, ADPKD
Predicting 6-month mortality risk of patients commencing dialysis treatment for end-stage kidney disease 2017 Sara E Ivory, Kevan R Polkinghorne, Yeasmin Khandakar, Jessica Kasza, Sophia Zoungas, Retha Steenkamp, Paul Roderick, Rory Wolfe Nephrology Dialysis Transplantation
Predicting mortality after start of long-term dialysis-International validation of one- and two-year prediction models 2023 Mikko Haapio, Merel van Diepen, Retha Steenkamp, Jaakko Helve, Friedo W Dekker, Fergus Caskey, Patrik Finne PLoS One UKRR
Predicting mortality in incident dialysis patients: an analysis of the United Kingdom Renal Registry 2011 Martin Wagner; David Ansell; David M. Kent; John L. Griffith; David Naimark; Christoph Wanner; Navdeep Tangri American journal of kidney diseases UKRR
Predicting technique survival in peritoneal dialysis patients: comparing artificial neural networks and logistic regression 2008 Navdeep Tangri; David Ansell; David Naimark Nephrology, dialysis, transplantation UKRR
Pregnancy-associated progression of chronic kidney disease: a study protocol for the development and validation of a clinical predictive tool (PREDICT) 2023 Elizabeth Ralston, Michelle Hladunewich, Chris Farmer, Juan-Jesus Carrero; PREDICT Investigation Group; Kate Bramham Journal of Nephrology UKRR, RaDaR, Pregnancy and Chronic Kidney Disease
Proceedings of the First International Conference on Stepped Wedge Trial Design : York, UK, 10 March 2016 2016 Mona Kanaan, Noreen Dadirai Mdege, Ada Keding, RA Parker, N. Mills, A. Shah, F. Strachan, C. Keerie, C. J. Weir, Andrew Forbes, Karla Hemming, Sarah A. Lawton, Emma Healey, Martyn Lewis, Elaine Nicholls, Clare Jinks, Valerie Tan, Andrew Finney, Christian D. Mallen; on behalf of the ENHANCE Study Team; Erik Lenguerrand, Graeme MacLennan, John Norrie, Siladitya Bhattacharya, Tim Draycott ; on behalf of the Thistle group; Richard Hooper, Steven Teerenstra, Esther de Hoop, Sandra Eldridge, Alan Girling, Monica Taljaard, Gian Luca Di Tanna, Antonio Gasparrini, Anna Casula, Fergus Caskey, Erik Lenguerrand, Shona Methven, Stephanie MacNeill, Margaret May, Nicholas Selby, Leon Danon, Hannah Christensen, Adam Finn, Margaret May, Fumihito Takanashi, Ada Keding, Simon Crouch, Mona Kanaan, Caroline A. Kristunas4, Karen L. Smith, Laura J. Gray, John N.S. Matthews, R. Al-Shahi Salman, R. A. Parker, A. Maxwell, M. Dennis, A. Rudd, C. J. Weir, Jennifer A. Thompson, Katherine L. Fielding, Calum Davey, Alexander M. Aiken, James R. Hargreaves, Richard J. Hayes, Vivian H. Lyons, Lingyu Li, James Hughes, Ali Rowhani-Rahbar, Karla Hemming, Monica Taljaard, Andrew Forbes Trials
Psychosocial Health and Lifestyle Behaviors in Young Adults Receiving Renal Replacement Therapy Compared to the General Population: Findings From the SPEAK Study 2019 Alexander J Hamilton, Fergus J Caskey, Anna Casula, Yoav Ben-Shlomo, Carol D Inward American Journal of Kidney Diseases UKRR
Quality assuring early dialysis care: evaluating rates of death and recovery within 90 days of first dialysis using the UK Renal Registry 2021 Barnaby D Hole, Anna Casula, Fergus J Caskey Clinical Kidney Journal UKRR
Quality of Reporting and Study Design of CKD Cohort Studies Assessing Mortality in the Elderly Before and After STROBE: A Systematic Review 2016 Anirudh Rao, Katharina Brück, Shona Methven, Rebecca Evans, Vianda S Stel, Kitty J Jager, Lotty Hooft, Yoav Ben-Shlomo, Fergus Caskey PLoS ONE
Randomized Controlled Trial Evidence of Cost-Effectiveness of a Multifaceted AKI Intervention Approach 2020 Nicholas M Selby, Luís Korrodi-Gregório, Anna Casula, Nitin V Kolhe, Daniel Ribes Arbonés, Katelyn D Bukieda, Deepak Sahu, Chris Rao, Giacomo Basadonna Kidney International Reports
Randomized Trial Comparing Proactive, High-Dose versus Reactive, Low-Dose Intravenous Iron Supplementation in Hemodialysis (PIVOTAL): Study Design and Baseline Data 2018 Iain C Macdougall, Claire White, Stefan D Anker, Sunil Bhandari, Kenneth Farrington, Philip A Kalra, John J V McMurray, Heather Murray, Retha Steenkamp, Charles R V Tomson, David C Wheeler, Christopher G Winearls, Ian Ford; on behalf of the PIVOTAL Trial investigators American Journal of Nephrology
Rationale and design for SHAREHD: a quality improvement collaborative to scale up Shared Haemodialysis Care for patients on centre based haemodialysis 2017 James Fotheringham, Tania Barnes, Louese Dunn, Sonia Lee, Steven Ariss, Tracey Young, Stephen J Walters, Paul Laboi, Andy Henwood, Rachel Gair, Martin Wilkie BMC Nephrology
Rationale and design of BISTRO: a randomized controlled trial to determine whether bioimpedance spectroscopy-guided fluid management maintains residual kidney function in incident haemodialysis patients 2017 Simon J Davies, Fergus J Caskey, David Coyle, Elizabeth Lindley, Jamie Macdonald, Sandip Mitra, Martin Wilkie, Andrew Davenport, Ken Farrington, Indranil Dasgupta, Paula Ormandy, Lazaros Andronis, Ivonne Solis-Trapala, Julius Sim BMC Nephrology
Recovery of kidney function in patients treated with maintenance dialysis-a report from the ERA-EDTA Registry 2021 Lily Jakulj, Anneke Kramer, Anders Åsberg, Johan de Meester, Carmen Santiuste de Pablos, Jaakko Helve, Marc H Hemmelder, Alexandre Hertig, Mustafa Arici, Samira Bell, Lucile Mercadal, Carmen Diaz-Corte, Runolfur Palsson, Manuel Benitez Sanchez, Julia Kerschbaum, Frederic Collart, Ziad A Massy, Kitty J Jager, Marlies Noordzij Nephrology Dialysis Transplant UKRR, ERA-EDTA
Regional citrate anticoagulation versus systemic heparin anticoagulation for continuous kidney replacement therapy in intensive care 2023 James C Doidge, Doug W Gould, Zia Sadique, Mark Borthwick, Robert A Hatch, Fergus J Caskey, Lui Forni, Robert F Lawrence, Clare MacEwan, Marlies Ostermann, Paul R Mouncey, David A Harrison, Kathryn M Rowan, J Duncan Young, Peter J Watkinson Journal of Critical Care UKRR
Relative risk versus absolute risk: one cannot be interpreted without the other 2017 Marlies Noordzij, Merel van Diepen, Fergus C Caskey, Kitty J Jager Nephrology Dialysis Transplantation
Renal centre characteristics and physician practice patterns associated with home dialysis use 2013 Clare I Castledine, Julie A Gilg, Chris Rogers, Yoav Ben-Shlomo, Fergus J Caskey Nephrology, Dialysis, Transplantation UKRR
Renal replacement anticoagulant management: Protocol and analysis plan for an observational comparative effectiveness study of linked data sources 2022 Doug W Gould, James Doidge, M Zia Sadique, Mark Borthwick, Fergus J Caskey, Lui Forni, Robert F Lawrence, Clare MacEwen, Paul R Mouncey, Marlies Ostermann, David A Harrison, Kathryn M Rowan, J Duncan Young, Peter J Watkinson Journal of the Intensive Care Society UKRR
Renal replacement therapy in Europe-a summary of the 2009 ERA-EDTA Registry Annual Report 2012 Moniek W M van de Luijtgaarden, Marlies Noordzij, Christoph Wanner, Kitty J Jager Clinical Kidney Journal UKRR, ERA-EDTA
Renal replacement therapy in Europe-a summary of the 2010 ERA-EDTA Registry Annual Report 2013 Anneke Kramer, Vianda S Stel, José Maria Abad Diez, Ramón Alonso de la Torre, Encarnación Bouzas Caamaño, Svjetlana Čala, Higini Cao Baduell, Pablo Castro de la Nuez, Harijs Cernevskis, Frederic Collart, Cécile Couchoud, Johan de Meester, Ljubica Djukanovic, Manuel Ferrer-Alamar, Patrik Finne, Damian Fogarty, María de Los Ángeles García Bazaga, Liliana Garneata, Eliezer Golan, Raquel Gonzalez Fernández, James G Heaf, Andries Hoitsma, George A Ioannidis, Mykola Kolesnyk, Reinhard Kramar, Torbjørn Leivestad, Aurelio Limido, Frantisek Lopot, Fernando Macario, Ángela Magaz, Eduardo Martín-Escobar, Wendy Metcalfe, Marlies Noordzij, Mai Ots-Rosenberg, Runolfur Palsson, Celestino Piñera, Maurizio Postorino, Karl G Prutz, Marina Ratkovic, Halima Resic, Aurelio Rodríguez Hernández, Boleslaw Rutkowski, Kamil Serdengeçti, Tomas Sierra Yebenes, Viera Spustová, Olivera Stojceva-Taneva, Natalia A Tomilina, Moniek W M van de Luijtgaarden, Karlijn J van Stralen, Christoph Wanner, Kitty J Jager Clinical Kidney Journal UKRR, ERA-EDTA
Renal replacement therapy in Europe: a summary of the 2011 ERA-EDTA Registry Annual Report 2014 Marlies Noordzij, Anneke Kramer, José M Abad Diez, Ramón Alonso de la Torre, Emma Arcos Fuster, Boris T Bikbov, Marjolein Bonthuis, Encarnación Bouzas Caamaño, Svetlana Čala, Fergus J Caskey, Pablo Castro de la Nuez, Harijs Cernevskis, Frederic Collart, Rafael Díaz Tejeiro, Ljubica Djukanovic, Manuel Ferrer-Alamar, Patrik Finne, María de Los Angelos García Bazaga, Liliana Garneata, Eliezer Golan, Raquel Gonzalez Fernández, James G Heaf, Andries Hoitsma, George A Ioannidis, Mykola Kolesnyk, Reinhard Kramar, Mathilde Lasalle, Torbjørn Leivestad, Frantisek Lopot, Moniek W M van de Luijtgaarden, Fernando Macário, Ángela Magaz, Eduardo Martín Escobar, Johan de Meester, Wendy Metcalfe, Mai Ots-Rosenberg, Runolfur Palsson, Celestino Piñera, Maria Pippias, Karl G Prütz, Marina Ratkovic, Halima Resić, Aurelio Rodríguez Hernández, Boleslaw Rutkowski, Viera Spustová, Vianda S Stel, Olivera Stojceva-Taneva, Gültekin Süleymanlar, Christoph Wanner, Kitty J Jager Clinical Kidney Journal UKRR, ERA-EDTA
Renal replacement therapy in Europe: a summary of the 2012 ERA-EDTA Registry Annual Report 2015 Maria Pippias, Vianda S Stel, José Maria Abad Diez, Nikolaos Afentakis, Jose Antonio Herrero-Calvo, Manuel Arias, Natalia Tomilina, Encarnación Bouzas Caamaño, Jadranka Buturovic-Ponikvar, Svjetlana Čala, Fergus J Caskey, Pablo Castro de la Nuez, Harijs Cernevskis, Frederic Collart, Ramón Alonso de la Torre, Maria de Los Ángeles García Bazaga, Johan De Meester, Joan Manuel Díaz, Ljubica Djukanovic, Manuel Ferrer Alamar, Patrik Finne, Liliana Garneata, Eliezer Golan, Raquel González Fernández, Gonzalo Gutiérrez Avila, James Heaf, Andries Hoitsma, Nino Kantaria, Mykola Kolesnyk, Reinhard Kramar, Anneke Kramer, Mathilde Lassalle, Torbjørn Leivestad, Frantisek Lopot, Fernando Macário, Angela Magaz, Eduardo Martín-Escobar, Wendy Metcalfe, Marlies Noordzij, Runolfur Palsson, Ülle Pechter, Karl G Prütz, Marina Ratkovic, Halima Resić, Boleslaw Rutkowski, Carmen Santiuste de Pablos, Viera Spustová, Gültekin Süleymanlar, Karlijn Van Stralen, Nestor Thereska, Christoph Wanner, Kitty J Jager Clinical Kidney Journal UKRR, ERA-EDTA
Renal replacement therapy in Europe: a summary of the 2013 ERA-EDTA Registry Annual Report with a focus on diabetes mellitus 2016 Anneke Kramer, Maria Pippias, Vianda S Stel, Marjolein Bonthuis, José Maria Abad Diez, Nikolaos Afentakis, Ramón Alonso de la Torre, Patrice Ambuhl, Boris Bikbov, Encarnación Bouzas Caamaño, Ivan Bubic, Jadranka Buturovic-Ponikvar, Fergus J Caskey, Pablo Castro de la Nuez, Harijs Cernevskis, Frederic Collart, Jordi Comas Farnés, Maria de Los Ángeles Garcia Bazaga, Johan De Meester, Manuel Ferrer Alamar, Patrik Finne, Liliana Garneata, Eliezer Golan, James G Heaf, Marc Hemmelder, Kyriakos Ioannou, Nino Kantaria, Mykola Kolesnyk, Reinhard Kramar, Mathilde Lassalle, Visnja Lezaic, Frantisek Lopot, Fernando Macário, Angela Magaz, Eduardo Martín-Escobar, Wendy Metcalfe, Mai Ots-Rosenberg, Runolfur Palsson, Celestino Piñera Celestino, Halima Resić, Boleslaw Rutkowski, Carmen Santiuste de Pablos, Viera Spustová, Maria Stendahl, Ariana Strakosha, Gültekin Süleymanlar, Marta Torres Guinea, Anna Varberg Reisæter, Evgueniy Vazelov, Edita Ziginskiene, Ziad A Massy, Christoph Wanner, Kitty J Jager, Marlies Noordzij Clinical Kidney Journal UKRR, ERA-EDTA
Response to First Course of Intensified Immunosuppression in Genetically Stratified Steroid Resistant Nephrotic Syndrome 2020 Mason A et al. Clin J Am Soc Nephrol RaDaR, Nephrotic Syndrome
Results in the ESPN/ERA-EDTA Registry suggest disparities in access to kidney transplantation but little variation in graft survival of children across Europe 2020 Marjolein Bonthuis, Liz Cuperus, Nicholas C Chesnaye, Sema Akman, Angel Alonso Melgar, Sergey Baiko, Antonia H Bouts, Olivia Boyer, Kremena Dimitrova, Carmen do Carmo, Ryszard Grenda, James Heaf, Timo Jahnukainen, Augustina Jankauskiene, Lukas Kaltenegger, Mirjana Kostic, Stephen D Marks, Andromachi Mitsioni, Gregor Novljan, Runolfur Palsson, Paloma Parvex, Ludmila Podracka, Anna Bjerre, Tomas Seeman, Jasna Slavicek, Tamas Szabo, Burkhard Tönshoff, Diletta D Torres, Koen J Van Hoeck, Susanne Westphal Ladfors, Jérôme Harambat, Jaap W Groothoff, Kitty J Jager Kidney International UKRR, ERA-EDTA
Seasonal mortality trends for hospitalised patients with acute kidney injury across England 2023 Esther Wong, Javeria Peracha, David Pitcher, Anna Casula, Retha Steenkamp, James F Medcalf & Dorothea Nitsch BMC Nephrology UKRR
Simultaneous sequencing of 24 genes associated with steroid-resistant nephrotic syndrome 2013 Hugh J. McCarthy; Agnieszka Bierzynska; Matt Wherlock; Milos Ognjanovic; Larissa Kerecuk; Shivaram Hegde; Sally Feather; Rodney D. Gilbert; Leah Krischock; Caroline Jones; Manish D. Sinha; Nicholas J. A. Webb; Martin Christian; Margaret M. Williams; Stephen Marks; Anja Koziell; Gavin I. Welsh; Moin A. Saleem Clinical journal of the American Society of Nephrology RaDaR, Nephrotic Syndrome
Social deprivation, ethnicity, and access to the deceased donor kidney transplant waiting list in England and Wales 2010 Udaya Udayaraj, Yoav Ben-Shlomo, Paul Roderick, Anna Casula, Chris Dudley, Rachel Johnson, Dave Collett, David Ansell, Charles Tomson, Fergus Caskey Transplantation UKRR
Sociodemographic features and mortality of individuals on haemodialysis treatment who test positive for SARS-CoV-2: A UK Renal Registry data analysis 2020 Manuela Savino, Anna Casula, Shalini Santhakumaran, David Pitcher, Esther Wong, Winnie Magadi, Katharine M. Evans, Fran Benoy-Deeney, James Griffin, Lucy Plumb, Retha Steenkamp, Dorothea Nitsch, James Medcalf PLOS ONE UKRR
Sociodemographic, Psychologic Health, and Lifestyle Outcomes in Young Adults on Renal Replacement Therapy 2017 Alexander J Hamilton, Rhian L Clissold, Carol D Inward, Fergus J Caskey, Yoav Ben-Shlomo Clinical Journal of the American Society of Nephrology
Strategic plan for integrated care of patients with kidney failure 2020 David C H Harris, Simon J Davies, Fredric O Finkelstein, Vivekanand Jha, Aminu K Bello, Mark Brown, Fergus J Caskey, Jo-Ann Donner, Adrian Liew, Elmi Muller, Saraladevi Naicker, Philip J O'Connell, Roberto Pecoits Filho, Tushar Vachharajani; Strategic Plan Working Groups Kidney International
Strengthening Renal Registries and ESRD Research in Africa 2017 M Razeen Davids, Fergus J Caskey, Taryn Young, Gillian K Balbir Singh Seminars in Nephrology
Supplemented ERA-EDTA Registry data evaluated the frequency of dialysis, kidney transplantation, and comprehensive conservative management for patients with kidney failure in Europe 2021 Vianda S Stel, Rianne W de Jong, Anneke Kramer, Anton M Andrusev, José M Baltar, Myftar Barbullushi, Samira Bell, Pablo Castro de la Nuez, Harijs Cernevskis, Cécile Couchoud, Johan De Meester, Bjørn O Eriksen, Liliana Gârneaţă, Eliezer Golan, Jaakko Helve, Marc H Hemmelder, Kristine Hommel, Kyriakos Ioannou, Faiçal Jarraya, Nino Kantaria, Julia Kerschbaum, Kirill S Komissarov, Ángela Magaz, Lucile Mercadal, Mai Ots-Rosenberg, Runólfur Pálsson, Axel Rahmel, Helena Rydell, Manuela Savino, Nurhan Seyahi, Maria F Slon Roblero, Olivera Stojceva-Taneva, Arjan van der Tol, Evgueniy S Vazelov, Edita Ziginskiene, Óscar Zurriaga, Raymond C Vanholder, Ziad A Massy, Kitty J Jager Kidney International
Supportive care for end-stage kidney disease: an integral part of kidney services across a range of income settings around the world 2020 Barnaby Hole, Brenda Hemmelgarn, Edwina Brown, Mark Brown, Mignon I McCulloch, Carlos Zuniga, Sharon P Andreoli, Peter G Blake, Cécile Couchoud, Alfonso M Cueto-Manzano, Gavin Dreyer, Guillermo Garcia Garcia, Kitty J Jager, Marla McKnight, Rachael L Morton, Fliss E M Murtagh, Saraladevi Naicker, Gregorio T Obrador, Jeffrey Perl, Muhibur Rahman, Kamal D Shah, Wim Van Biesen, Rachael C Walker, Karen Yeates, Alexander Zemchenkov, Ming-Hui Zhao, Simon J Davies, Fergus J Caskey Kidney International Supplements
Survival of South African patients on renal replacement therapy 2020 Thabiet Jardine, Esther Wong, Retha Steenkamp, Fergus J Caskey, Mogamat Razeen Davids Clinical Kidney Journal
Symptom burden according to dialysis day of the week in three times a week haemodialysis patients 2022 Pann Ei Hnynn Si, Rachel Gair, Tania Barnes, Louese Dunn, Sonia Lee, Steven Ariss, Stephen J Walters, Martin Wilkie, James Fotheringham PLoS ONE
Symptom clusters in chronic kidney disease and their association with people's ability to perform usual activities 2022 Currie Moore, Shalini Santhakumaran, Glen P. Martin, Thomas J. Wilkinson, Fergus J. Caskey, Winnie Magadi, Rachel Gair, Alice C. Smith, David Wellsted, Sabine N. van der Veer PLOS ONE UKRR
Taking hospital treatments home: a mixed methods case study looking at the barriers and success factors for home dialysis treatment and the influence of a target on uptake rates 2015 Gill Combes, Kerry Allen, Kim Sein, Alan Girling, Richard Lilford Implementation Science UKRR
TBC1D8B Loss-of-Function Mutations Lead to X-Linked Nephrotic Syndrome via Defective Trafficking Pathways 2019 Dorval G Am J Hum Genet RaDaR
Ten-year trends in epidemiology and outcomes of pediatric kidney replacement therapy in Europe: data from the ESPN/ERA-EDTA Registry 2021 Marjolein Bonthuis, Enrico Vidal, Anna Bjerre, Özlem Aydoğ, Sergey Baiko, Liliana Garneata, Isabella Guzzo, James G Heaf, Timo Jahnukainen, Marc Lilien, Tamara Mallett, Gabriel Mirescu, Elena A Mochanova, Eva Nüsken, Katherine Rascher, Dimitar Roussinov, Maria Szczepanska, Michel Tsimaratos, Askiti Varvara, Enrico Verrina, Bojana Veselinović, Kitty J Jager, Jérôme Harambat Paediatric Nephrology UKRR, ERA-EDTA
The 'centre effect' in nephrology: what do differences between nephrology centres tell us about clinical performance in patient management? 2011 Alexandra Hodsman, Yoav Ben-Shlomo, Paul Roderick, Charles R V Tomson Nephron Clinical Practice
The 2006 ERA-EDTA Registry annual report: a précis 2009 Vianda S Stel, Anneke Kramer, Carmine Zoccali, Kitty J Jager Journal of Nephrology UKRR, ERA-EDTA
The 2008 ERA-EDTA Registry Annual Report-a précis 2011 Vianda S Stel, Moniek W M van de Luijtgaarden, Christoph Wanner, Kitty J Jager; on behalf of the European Renal Registry Investigators NDT Plus UKRR, ERA-EDTA
The 21st UK Renal Registry Annual Report: A Summary of Analyses of Adult Data in 2017 2019 Pyart R et al. Nephron UKRR
The 21st UK Renal Registry Annual Report: A Summary of Analyses of Paediatric Data in 2017 2019 Plumb L et al. Nephron UKRR
The Challenges of Using UK Renal Registry Data to Audit the Care of Patients with Diabetes on Renal Replacement Therapy 2020 Cox L et al. Nephron UKRR
The changing trends and outcomes in renal replacement therapy: data from the ERA-EDTA Registry 2016 Maria Pippias, Kitty J Jager, Anneke Kramer, Torbjørn Leivestad, Manuel Benítez Sánchez, Fergus J Caskey, Frederic Collart, Cécile Couchoud, Friedo W Dekker, Patrik Finne, Denis Fouque, James G Heaf, Marc H Hemmelder, Reinhard Kramar, Johan De Meester, Marlies Noordzij, Runolfur Palsson, Julio Pascual, Oscar Zurriaga, Christoph Wanner, Vianda S Stel Nephrology Dialysis Transplantation UKRR, ERA-EDTA
The clinical epidemiology of young adults starting renal replacement therapy in the UK: presentation, management and survival using 15 years of UK Renal Registry data 2018 Alexander J Hamilton, Anna Casula, Yoav Ben-Shlomo, Fergus J Caskey, Carol D Inward Nephrology, Dialysis, Transplantation UKRR
The ERA Registry Annual Report 2019: summary and age comparisons 2022 Rianne Boenink, Megan E Astley, Jilske A Huijben, Vianda S Stel, Julia Kerschbaum, Mai Ots-Rosenberg, Anders A Åsberg, Frantisek Lopot, Eliezer Golan, Pablo Castro de la Nuez, Marta Rodríguez Camblor, Sara Trujillo-Alemán, Juan Carlos Ruiz San Millan, Pablo Ucio Mingo, Juan Manuel Díaz, M Encarnación Bouzas-Caamaño, Marta Artamendi, Manuel I Aparicio Madre, Carmen Santiuste de Pablos, María Fernanda Slon Roblero, Oscar Zurriaga, Maria E Stendahl, Samira Bell, Alma Idrizi, Kyriakos Ioannou, Alicja Debska-Slizien, Ana A Galvão, Johan M De Meester, Halima Resić, Kristine Hommel, Danilo Radunovic, Runolfur Pálsson, Mathilde Lassalle, Patrik Finne, María De los Ángeles-Garcia Bazaga, Nikola Gjorgjievski, Nurhan Seyahi, Marjolein Bonthuis, Alberto Ortiz, Kitty J Jager, Anneke Kramer Clinical Kidney Journal UKRR, ERA-EDTA
The ERA Registry Annual Report 2020: a summary 2023 Megan E Astley, Rianne Boenink, Samar Abd ElHafeez, Sara Trujillo-Alemán, Federico Arribas, Anders Åsberg, Pazit Beckerman, Samira Bell, María Encarnación Bouzas-Caamaño, Jordi Comas Farnés, Ana Amélia Galvão, Nikola Gjorgjievski, Vjollca Godanci Kelmendi, Rebecca Guidotti, Jaakko Helve, Alma Idrizi, Ólafur S Indriðason, Kyriakos Ioannou, Julia Kerschbaum, Kirill Komissarov, Pablo Castro de la Nuez, Mathilde Lassalle, Maurizio Nordio, Olga Lucía Rodríguez Arévalo, Carmen Santiuste, Nurhan Seyahi, María Fernanda Slon Roblero, Retha Steenkamp, Marc A G J ten Dam, Elena V Zakharova, Edita Ziginskiene, Marjolein Bonthuis, Vianda S Stel, Alberto Ortiz, Kitty J Jager, and Anneke Kramer Clinical Kidney Journal UKRR, ERA-EDTA
The ERA Registry Annual Report 2021: a summary 2023 Brittany A Boerstra, Rianne Boenink, Megan E Astley, Marjolein Bonthuis, Samar Abd ElHafeez, Federico Arribas Monzón, Anders Åsberg, Pazit Beckerman, Samira Bell, Aleix Cases Amenós, Pablo Castro de la Nuez, Marc A G J ten Dam, Alicja Debska-Slizien, Nikola Gjorgjievski, Rebecca Giudotti, Jaakko Helve, Kristine Hommel, Alma Idrizi, Ólafur S Indriðason, Faiçal Jarraya, Julia Kerschbaum, Kirill S Komissarov, Nadiia Kozliuk, Milica Kravljaca, Mathilde Lassale, Johan M De Meester, Mai Ots-Rosenberg, Zoe Plummer, Danilo Radunovic, Olena Razvazhaieva, Halima Resic, Olga Lucía Rodríguez Arévalo, Carmen Santiuste de Pablos, Nurhan Seyahi, María Fernanda Slon-Roblero, Maria Stendahl, Miloreta Tolaj-Avdiu, Sara Trujillo-Alemán, Ieva Ziedina, Edita Ziginskiene, Alberto Ortiz, Kitty J Jager, Vianda S Stel, Anneke Kramer Clinical Kidney Journal UKRR
The ERA-EDTA Registry Annual Report 2017: a summary 2020 Anneke Kramer, Rianne Boenink, Marlies Noordzij, Jizzo R Bosdriesz, Vianda S Stel, Palma Beltrán, Juan C Ruiz, Nurhan Seyahi, Jordi Comas Farnés, Maria Stendahl, Liliana Garneata, Rebecca Winzeler, Eliezer Golan, František Lopot, Grzegorz Korejwo, Marjolein Bonthuis, Mathilde Lassalle, Maria F Slon Roblero, Viktorija Kuzema, Kristine Hommel, Olivera Stojceva-Taneva, Anders Asberg, Reinhard Kramar, Marc H Hemmelder, Johan De Meester, Evgueniy Vazelov, Anton Andrusev, Pablo Castro de la Nuez, Jaakko Helve, Kirill Komissarov, Anna Casula, Ángela Magaz, Carmen Santiuste de Pablos, Ivan Bubić, Jamie P Traynor, Kyriakos Ioannou, Alma Idrizi, Runolfur Palsson, Jean-Marin des Grottes, Viera Spustova, Miloreta Tolaj-Avdiu, Faical Jarraya, Maurizio Nordio, Edita Ziginskiene, Ziad A Massy, Kitty J Jager Clinical Kidney Journal UKRR, ERA-EDTA
The ERA-EDTA Registry Annual Report 2018: a summary 2021 Anneke Kramer, Rianne Boenink, Vianda S Stel, Carmen Santiuste de Pablos, Filip Tomović, Eliezer Golan, Julia Kerschbaum, Nurhan Seyahi, Kyriakos Ioanou, Palma Beltrán, Oscar Zurriaga, Ángela Magaz, María F Slon Roblero, Nikola Gjorgjievski, Liliana Garneata, Federico Arribas, Ana A Galvão, Samira Bell, Mai Ots-Rosenberg, José M Muñoz-Terol, Rebecca Winzeler, Kristine Hommel, Anders Åsberg, Viera Spustova, María Ángeles Palencia García, Evgueniy Vazelov, Patrik Finne, Marc A G J Ten Dam, František Lopot, Sara Trujillo-Alemán, Mathilde Lassalle, Mykola O Kolesnyk, Shalini Santhakumaran, Alma Idrizi, Anton Andrusev, Jordi Comas Farnés, Kirill Komissarov, Halima Resić, Runolfur Palsson, Viktorija Kuzema, Maria Angeles Garcia Bazaga, Edita Ziginskiene, Maria Stendahl, Marjolein Bonthuis, Ziad A Massy, Kitty J Jager Clinical Kidney Journal UKRR
The European Renal Association - European Dialysis and Transplant Association (ERA-EDTA) Registry Annual Report 2016: a summary 2019 Anneke Kramer, Maria Pippias, Marlies Noordzij, Vianda S Stel, Anton M Andrusev, Manuel I Aparicio-Madre, Federico E Arribas Monzón, Anders Åsberg, Myftar Barbullushi, Palma Beltrán, Marjolein Bonthuis, Fergus J Caskey, Pablo Castro de la Nuez, Harijs Cernevskis, Johan De Meester, Patrik Finne, Eliezer Golan, James G Heaf, Marc H Hemmelder, Kyriakos Ioannou, Nino Kantaria, Kirill Komissarov, Grzegorz Korejwo, Reinhard Kramar, Mathilde Lassalle, František Lopot, Fernando Macário, Bruce Mackinnon, Runólfur Pálsson, Ülle Pechter, Vicente C Piñera, Carmen Santiuste de Pablos, Alfons Segarra-Medrano, Nurhan Seyahi, Maria F Slon Roblero, Olivera Stojceva-Taneva, Evgueniy Vazelov, Rebecca Winzeler, Edita Ziginskiene, Ziad Massy, Kitty J Jager Clinical Kidney Journal UKRR, ERA-EDTA
The European Renal Association - European Dialysis and Transplant Association Registry Annual Report 2014: a summary 2017 Maria Pippias, Anneke Kramer, Marlies Noordzij, Nikolaos Afentakis, Ramón Alonso de la Torre, Patrice M Ambühl, Manuel I Aparicio Madre, Felipe Arribas Monzón, Anders Åsberg, Marjolein Bonthuis, Encarnación Bouzas Caamaño, Ivan Bubic, Fergus J Caskey, Pablo Castro de la Nuez, Harijs Cernevskis, Maria de Los Ángeles Garcia Bazaga, Jean-Marin des Grottes, Raquel Fernández González, Manuel Ferrer-Alamar, Patrik Finne, Liliana Garneata, Eliezer Golan, James G Heaf, Marc H Hemmelder, Alma Idrizi, Kyriakos Ioannou, Faical Jarraya, Nino Kantaria, Mykola Kolesnyk, Reinhard Kramar, Mathilde Lassalle, Visnja V Lezaic, Frantisek Lopot, Fernando Macario, Ángela Magaz, Angel L Martín de Francisco, Eduardo Martín Escobar, Alberto Martínez Castelao, Wendy Metcalfe, Inmaculada Moreno Alia, Maurizio Nordio, Mai Ots-Rosenberg, Runolfur Palsson, Marina Ratkovic, Halima Resic, Boleslaw Rutkowski, Carmen Santiuste de Pablos, Nurhan Seyahi, María Fernanda Slon Roblero, Viera Spustova, Koenraad J F Stas, María E Stendahl, Olivera Stojceva-Taneva, Evgueniy Vazelov, Edita Ziginskiene, Ziad Massy, Kitty J Jager, Vianda S Stel Clinical Kidney Journal UKRR, ERA-EDTA
The Importance of Context to Interpretation of Dialysis Access Patterns: Insights from the UK Renal Registry Data Set 2019 Hole B Perit Dial Int UKRR
The last pre-pandemic European Renal Association Registry report: age at start of kidney replacement therapy in Europe 2021 Sol Carriazo, Alberto Ortiz Clinical Kidney Journal UKRR, ERA-EDTA
The mortality and hospitalization rates associated with the long interdialytic gap in thrice-weekly hemodialysis patients 2015 James Fotheringham, Damian G Fogarty, Meguid El Nahas, Michael J Campbell, Ken Farrington Kidney International UKRR
The National Registry of Rare Kidney Diseases 2023 David Pitcher, Kate Bramham, Danny Gale Journal of Kidney Care RaDaR
The National Registry of Rare Kidney Diseases (RaDaR): design, recruitment, and cross-sectional analyses of 25,880 adults and children with rare kidney diseases in the UK 2023 Katie Wong, David Pitcher, Fiona Braddon, Lewis Downward, Retha Steenkamp, Nicholas Annear, Jonathan Barratt, Coralie Bingham, Richard J. Coward, Tina Chrysochou, David Game, Sian Griffin, Matt Hall, Sally Johnson, Durga Kanigicherla, Fiona Karet Frankl, David Kavanagh, Larissa Kerecuk, Eamonn R. Maher, Shabbir Moochhala, Jenny Pinney, John A. Sayer, Roslyn Simms, Smeeta Sinha, Shalabh Srivastava, Frederick W. K. Tam, A. Neil Turner, Stephen B. Walsh, Aoife Waters, Patricia Wilson, Edwin Wong, RaDaR consortium, Karla Therese L. Sy, Kui Huang, Jamie Ye, Dorothea Nitsch, Moin Saleem, Detlef Bockenhauer, Kate Bramham, Daniel P. Gale medRxiv RaDaR
The next step in chronic kidney disease staging: individualized risk prediction 2022 Rupert W Major, Paul Cockwell, Dorothea Nitsch, Navdeep Tangri Kidney International
The UK Chinese population with kidney failure: Clinical characteristics, management and access to kidney transplantation using 20 years of UK Renal Registry and NHS Blood and Transplant data 2022 Katie Wong, Fergus J Caskey, Anna Casula, Yoav Ben-Shlomo, Pippa Bailey PLoS One UKRR
The UK Renal Registry: making patient data matter 2018 Evans KM et al. Br J Hosp Med UKRR
Transforming Participation in Chronic Kidney Disease – is it possible to embed patient reported outcome measures to make a difference to care and the perception of care? 2019 Rachel M Gair, Catherine Stannard, Sabine N Van der Veer and Richard Fluck British Journal of Renal Medicine
Transplant access for children: there is more to be done 2023 Lucy Plumb, Stephen D Marks Pediatric Nephrology
Treatment and long-term outcome in primary distal renal tubular acidosis 2019 Lopez-Garcia S et al. Nephrology Dialysis Transplantation RaDaR, Tubulopathy
Trends in dialysis modality choice and related patient survival in the ERA-EDTA Registry over a 20-year period 2016 Moniek W M van de Luijtgaarden, Kitty J Jager, Mårten Segelmark, Julio Pascual, Frederic Collart, Aline C Hemke, César Remón, Wendy Metcalfe, Alfonso Miguel, Reinhard Kramar, Knut Aasarød, Ameen Abu Hanna, Raymond T Krediet, Staffan Schön, Pietro Ravani, Fergus J Caskey, Cecile Couchoud, Runolfur Palsson, Christoph Wanner, Patrik Finne, Marlies Noordzij Nephrology Dialysis Transplantation
Trends in kidney transplantation rate across Europe: study from the ERA Registry 2023 Rianne Boenink, Anneke Kramer, Rosalie E Tuinhout, Emilie Savoye, Anders Åsberg, Alma Idrizi, Julia Kerschbaum, Ieva Ziedina, Edita Ziginskiene, Emanuel Farrugia, Liliana Garneata, Elena V Zakharova, Samira Bell, Miha Arnol, Mårten Segelmark, Kyriakos Ioannou, Kristine Hommel, Mai Rosenberg-Ots, Evgueniy Vazelov, Jaakko Helve, Sándor Mihály, Runólfur Pálsson, Maurizio Nordio, Nikola Gjorgjievski, Aiko P J de Vries, Nurhan Seyahi, Winnie A Magadi, Halima Resić, Aleh Kalachyk, Axel O Rahmel, Ana A Galvão, Radomir Naumovic, Torbjörn Lundgren, Mustafa Arici, Johan M de Meester, Alberto Ortiz, Kitty J Jager, Vianda S Stel Nephrology Dialysis Transplant UKRR, ERA-EDTA
Trends in renal replacement therapy and changes in peritoneal dialysis utilization in the United kingdom 2011 Clare I Castledine, Fergus J Caskey, Charlie R V Tomson, David Ansell Peritoneal Dialysis International UKRR
UK Renal Registry 19th Annual Report: Chapter 13 Home Therapies in 2015: National and Centre-specific Analyses 2017 Matthew Tabinor, Anna Casula, Martin Wilkie, Simon Davies, Fergus Caskey, Mark Lambie Nephron UKRR
United Kingdom Catheter Study - Protocol Synopsis 2018 Victoria Briggs, Ivonne Solis-Trapala, Allan Wailloo, Keith McCulloch, Mark Lambie, Fergus Caskey, James Fotheringham, Simon Davies, Martin Wilkie Peritoneal Dialysis International
Validation of a United Kingdom Model to Predict Mortality in Incident Dialysis Patients in the Dialysis Outcomes and Practice Patterns Study Cohort: Introduction of a Clinical Risk Score 2022 Martin Wagner, David M Kent, Ronald L Pisoni, Damian Fogarty, Gero von Gersdorff, Christoph Wanner, Navdeep Tangri Kidney Medicine UKRR
Validity of estimated prevalence of decreased kidney function and renal replacement therapy from primary care electronic health records compared with national survey and registry data in the United Kingdom 2017 Masao Iwagami, Laurie A Tomlinson, Kathryn E Mansfield, Anna Casula, Fergus J Caskey, Grant Aitken, Simon D S Fraser, Paul J Roderick, Dorothea Nitsch Nephrology, Dialysis, Transplantation UKRR
Variation in Practice Patterns for Listing Patients for Renal Transplantation in the United Kingdom: A National Survey 2018 Rishi Pruthi, Sarah Tonkin-Crine, Melania Calestani, Geraldine Leydon, Caroline Eyles, Gabriel C Oniscu, Charles Tomson, Andrew Bradley, John L Forsythe, Clare Bradley, John Cairns, Christopher Dudley, Christopher Watson, Heather Draper, Rachel Johnson, Wendy Metcalfe, Damian Fogarty, Rommel Ravanan, Paul J Roderick; ATTOM Investigators Transplantation
What data collection methods work best for COVID19 outbreak surveillance for people with end stage kidney disease? An observational cohort study using the UK Renal Registry 2023 Shalini Santhakumaran, Manuela Savino, Fran Benoy-Deeney, Retha Steenkamp, James Medcalf & Dorothea Nitsch BMC Nephrology UKRR
What would it take to improve the quality of healthcare: more money, or more data? 2009 Charles R V Tomson Clinical Medicine (London) UKRR
Whole-genome sequencing of patients with rare diseases in a national health system 2020 Ernest Turro, William J Astle, Karyn Megy, Stefan Gräf, Daniel Greene, Olga Shamardina, Hana Lango Allen, Alba Sanchis-Juan, Mattia Frontini, Chantal Thys, Jonathan Stephens, Rutendo Mapeta, Oliver S Burren, Kate Downes, Matthias Haimel, Salih Tuna, Sri V V Deevi, Timothy J Aitman, David L Bennett, Paul Calleja, Keren Carss, Mark J Caulfield, Patrick F Chinnery, Peter H Dixon, Daniel P Gale, Roger James, Ania Koziell, Michael A Laffan, Adam P Levine, Eamonn R Maher, Hugh S Markus, Joannella Morales, Nicholas W Morrell, Andrew D Mumford, Elizabeth Ormondroyd, Stuart Rankin, Augusto Rendon, Sylvia Richardson, Irene Roberts, Noemi B A Roy, Moin A Saleem, Kenneth G C Smith, Hannah Stark, Rhea Y Y Tan, Andreas C Themistocleous, Adrian J Thrasher, Hugh Watkins, Andrew R Webster, Martin R Wilkins, Catherine Williamson, James Whitworth, Sean Humphray, David R Bentley; NIHR BioResource for the 100,000 Genomes Project; Nathalie Kingston, Neil Walker, John R Bradley, Sofie Ashford, Christopher J Penkett, Kathleen Freson, Kathleen E Stirrups, F Lucy Raymond, Willem H Ouwehand Nature
Young adults' perspectives on living with kidney failure: a systematic review and thematic synthesis of qualitative studies 2018 Phillippa K Bailey, Alexander J Hamilton, Rhian L Clissold, Carol D Inward, Fergus J Caskey, Yoav Ben-Shlomo, Amanda Owen-Smith BMJ Open

Guidelines

NICE accredited clinical practice guidelines 

Available here

25th Annual Report

Analyses about the care provided to patients at UK renal centres.

Read the report

2022 UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report