Papers

Title Year Authors Journal Database
The European Renal Association – European Dialysis and Transplant Association (ERA-EDTA) Registry Annual Report 2015: a summary 2018 Kramer A et al. Clin Kidney J UKRR
A role for OCRL in glomerular function and disease 2019 Preston R et al. Pediatr Nephrol RaDaR
Access to kidney transplantation in European adults aged 75–84 years and related outcomes: an analysis of the European Renal Association-European Dialysis and Transplant Association Registry 2018 Pippias M et al. Transpl Int UKRR
Acute kidney injury identification for pharmacoepidemiologic studies: Use of laboratory electronic acute kidney injury alerts versus electronic health records in Hospital Episode Statistics 2021 Manuela Savino, Lucy Plumb, Anna Casula,Katharine Evans, Esther Wong, Nitin Kolhe, James F. Medcalf, Dorothea Nitsch Pharmacoepidemiology and Drug Safety UKRR
Association between timing of dialysis initiation and clinical outcomes in the paediatric population: an ESPN/ERA-EDTA Registry study 2019 Preka E et al. Nephrol Dial Transplant UKRR
Associations with kidney transplant survival and eGFR decline in children and young adults in the United Kingdom: a retrospective cohort study 2020 Hamilton A et al. BMC Nephrol UKRR
BK polyomavirus practice patterns in the UK – results from a 2018 survey of UK renal centres 2020 Pyart R et al. Br J Renal Med UKRR
Causes of Renal Allograft Failure in the UK: Trends in UK Renal Registry and National Health Service Blood and Transplant Data From 2000 to 2013 2019 Burton H et al. Nephrol Dial Transplant UKRR
Centre variation in mortality following post-hospitalisation acute kidney injury: Analysis of a large national cohort 2021 Javeria Peracha, David Pitcher, Shalini Santhakumaran, Retha Steenkamp, James Fotheringham, Jamie Day, James F. Medcalf, Dorothea Nitsch, Graham W. Lipkin, William S. McKane Nephrology Dialysis Transplantation UKRR
Contributions of treatment centre and patient characteristics to patient-reported experience of haemodialysis: a national cross-sectional study 2021 Hawkins J et al. BMJ Open UKRR
COVID-19 in children with chronic kidney disease: findings from the UK Renal Registry 2020 Plumb L et al. Arch Dis Child UKRR
Growth patterns after kidney transplantation in European children over the past 25 years: an ESPN/ERA-EDTA Registry Study 2019 Bonthuis M et al. Transplantation UKRR
High-throughput sequencing contributes to the diagnosis of tubulopathies and familial hypercalcemia hypocalciuria in adults 2019 Marguerite Hureaux et al Kidney International, RaDaR
International collaborative efforts to establish kidney health surveillance systems 2020 Hole B et al. Kidney Int UKRR
Large-Scale Whole-Genome Sequencing Reveals the Genetic Architecture of Primary Membranoproliferative GN and C3 Glomerulopathy 2020 Adam P et al. J Amer Soc Nephrol RaDaR
Molecular stratification of idiopathic nephrotic syndrome 2019 Saleem M Nat Rev Nephrol RaDaR
Patient activation and its association with symptom burden and quality of life across the spectrum of chronic kidney disease stages in England 2022 Winnie Magadi, Courtney J. Lightfoot, Katherine E. Memory, Shalini Santhakumaran, Sabine N. van der Veer, Nicola Thomas, Rachel Gair and Alice C. Smith BMC Nephrology UKRR
Performance of an easy-to-use prediction model for renal patient survival: an external validation study using data from the ERA-EDTA Registry 2018 Hemke A et al. Nephrol Dial Transplant UKRR
Quality assuring early dialysis care: evaluating rates of death and recovery within 90 days of first dialysis using the UK Renal Registry 2021 Barnaby D Hole, Anna Casula, Fergus J Caskey Clinical Kidney Journal UKRR
Response to First Course of Intensified Immunosuppression in Genetically Stratified Steroid Resistant Nephrotic Syndrome 2020 Mason A et al. Clin J Am Soc Nephrol RaDaR
Sociodemographic features and mortality of individuals on haemodialysis treatment who test positive for SARS-CoV-2: a UK Renal Registry data analysis 2020 Savino M et al. PLOS ONE UKRR
TBC1D8B Loss-of-Function Mutations Lead to X-Linked Nephrotic Syndrome via Defective Trafficking Pathways 2019 Dorval G Am J Hum Genet RaDaR
The 21st UK Renal Registry Annual Report: A Summary of Analyses of Adult Data in 2017 2019 Pyart R et al. Nephron UKRR
The 21st UK Renal Registry Annual Report: A Summary of Analyses of Paediatric Data in 2017 2019 Plumb L et al. Nephron UKRR
The Challenges of Using UK Renal Registry Data to Audit the Care of Patients with Diabetes on Renal Replacement Therapy 2020 Cox L et al. Nephron UKRR
The ERA-EDTA Registry Annual Report 2018: a summary 2021 Kramer A et al. Clin Kidney J UKRR
The Importance of Context to Interpretation of Dialysis Access Patterns: Insights from the UK Renal Registry Data Set 2019 Hole B Perit Dial Int UKRR
The UK Renal Registry: making patient data matter 2018 Evans KM et al. Br J Hosp Med UKRR
Treatment and long-term outcome in primary distal renal tubular acidosis 2019 Lopez-Garcia S et al. Nephrology Dialysis Transplantation RaDaR

Guidelines

NICE accredited clinical practice guidelines 

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24th Annual Report

Analyses about the care provided to patients at UK renal centres.

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UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

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