UKRR data

We welcome contact from renal clinicians and other researchers who would like to access UKRR data and/or collaborate with the UKRR on grant applications.

Please note, the UKRR is only allowed to release patient-level data to academic and clinical organisations in the UK, the European Economic Area (EEA) and Switzerland. We cannot release patient level data to any commercial organisations. The UKRR may, by exception, accept applications from outside this geographical area, but will only share data with organisations in countries that have data protection laws equivalent to the GDPR.

Applying to access UKRR data

The UKRR is permitted to share the following datasets for audit and research - either at an aggregate level (anonymised) or at an individual patient level (pseudonymised):

The UKRR is also permitted to share five data items from its linked UKRR-NHSBT dataset: (1) date of transplant; (2) donor type of transplant; (3) type of transplant received; (4) cold ischaemia time, and (5) human leukocyte antigen mismatch.

If you wish to access a wider range of NHSBT data items, please see their website. If your application includes NHSBT-derived data and their release is approved we will ask you to fill out and email us a NHSBT data release form. We will liaise with NHSBT on your behalf.

Aggregate level (anonymised) data

Aggregate data include tables and graphs based on statistical analyses. To access aggregate data complete the application form and return it to ukrr-research@ukkidney.org

You will be notified of the UKRR’s decision within two weeks. If your request is approved, the delivery of the data will require at least a further two weeks.

Patient level (pseudonymised) data

To access patient level data:

Submit an expression of interest (EoI) to ukrr-research@ukkidney.org.
The EoI will be reviewed by our Data Review Group and you will be notified of the outcome within two weeks.
If your EoI is approved you will be invited to submit a full application form and data protection impact assessment (DPIA) for assessment at the next available UKRR Data Review Group meeting. Applications need to be received at least four weeks in advance of a meeting.
You will be notified of the outcome of your application and provided with any feedback within two weeks of the meeting. If your application is approved, we will ask you to sign a data sharing agreement prior to the release of any data.
If one or more UKKA statisticians will be supporting your project you will need to complete a publication planner for our senior statisticians to review.
You will then be allocated a senior statistician for your project and will be invited to a meeting where you will complete a service agreement together.

Forthcoming Data Review Group meeting dates are:

24/02/2026
21/04/2026
16/06/2026
18/08/2026
20/10/2026
15/12/2026

Including UKRR data in a grant application

Please email us at least four to six weeks before the grant application deadline and longer if it is a particularly complex grant.

We will ask you to complete a costing form so that we understand your proposed project and exactly what involvement you want from the UKRR. Quotes will be valid for up to 12 months.

If your grant application is successful we will invite you to apply for UKRR data through our data application process.

Please note, currently we are only permitted to release patient level data to academic and clinical organisations based in the UK – we cannot release patient level data to commercial organisations or to organisations outside the UK.