Patient Information | The UK Kidney Association

Information for patients is available for the conditions currently recruiting for the RaDaR rare disease registry. A Glossary provides further explanations of specific medical terms.

Alport Syndrome	APRT Deficiency (APRT-D)	Atypical Haemolytic Uraemic Syndrome (aHUS)
Autosomal Dominant Polycystic Kidney Disease (ADPKD)	Autosomal Dominant Tubulointerstitial Kidney Disease (ADTKD)	Autosomal Recessive Polycystic Kidney Disease (ARPKD)
Bartter Syndrome	BK Nephropathy	Calciphylaxis
Congenital Anomalies of the Kidneys and Urinary Tracts (CAKUT)	Cystinosis	Cystinuria
Dent Disease	EAST Syndrome (Epilepsy, Ataxia, Sensorineural deafness, Tubulopathy Syndrome)	Fabry Disease
Fibromuscular Dysplasia	Gitelman and Type 3 Bartter Syndromes	Haemolytic Uraemic Syndrome (Shia Toxin Associated: STEC-HUS)
Hepatocyte Nuclear Factor 1B Mutation (HNF1b)	Hyperoxaluria (Primary Hyperoxaluria, Oxalosis)	IgA Nephropathy
Inherited Renal Cancer Syndromes	Liddle Syndrome	Lowe Syndrome
Lupus Nephritis	Membranous Nephropathy	Mitochondrial Disease affecting the kidney (Mitochondrial)
Monoclonal Gammopathy of Renal Significance (MGRS)	MPGN, DDD & C3 Glomerulopathy	Nephronophthisis
Nephrotic Syndrome	Post-transplant Cytomegalovirus (CMV)	Pregnancy and Chronic Kidney Disease
Pure Red Cell Aplasia	Retroperitoneal Fibrosis	Tuberous Sclerosis
Vasculitis

Guidelines

NICE accredited clinical practice guidelines

25th Annual Report

Analyses about the care provided to patients at UK renal centres.

Read the report

2022 UKRR AKI Report

A report on the nationwide collection of AKI warning test scores.

Read the report