Kidney Patient Reported Experience Measure

Kidney Patient Reported Experience Measure (PREM)

The Kidney PREM is a national annual survey of kidney patients.

The aim of the Kidney PREM is to:

  • Help renal unit teams understand how patients feel about their experience of care

  • Show where improvement can be made

  • Give the UKRR a national picture of people’s experience of care.


Kidney PREM 2021

The Kidney PREM collection 2021 is now closed.

Results will be available here from Spring 2022.

 

Digital collection

Nearly 10,000 patients responded in the 2020 Kidney PREM survey. The 2021 collection was once again digital and open to all people living with CKD being treated in the UK.

Kidney PREM resources

Supporting Kidney PREM champions

Learning from the Welsh Renal Network, and with the support of the Kidney Quality Improvement Partnership, we aim to provide some virtual Kidney PREM champion training sessions during the first week of November, for anyone involved in coordinating and engaging their staff and patient community in the Kidney PREM –  kquip@renalregistry.nhs.uk for more information on when and how to access these free online sessions.

Improving patient experience - the importance of local stories

Thanks to your support, the kidney community has made a real success of establishing an annual patient experience survey. But we know that the survey is just a means to an end, and it is how that information is used to improve patients care and experience that really matters.

We would love to hear about and share the many examples of changes that kidney teams have introduced as a result of the Kidney PREM, to engage with patients and improve care. By sharing all the activity your local kidney team, volunteers or patient groups have done in response to the Kidney PREM, we can really inspire more teams to learn from the innovation and improvements made right across the UK, improving the experience for people living with kidney disease.

Get in touch with the Kidney PREM team

 




 

The background to the PREM 

PREM 2016 came about through the Transforming Participation in Chronic Kidney Disease (TP-CKD) Programme and was one of a series of measures developed by the Measurement Workstream with the aim to routinely collect patient-reported outcomes and experience measures in CKD patients.

The TP-CKD Programme was initially working with 10 renal units. The PREM became something bigger, however, when the renal unit clinical directors agreed at their annual forum in 2016, that a national PREM survey would be of value, and that many would be keen to participate.

Of the 52 adult renal units in England, 39 units (75%) took part in the pilot PREM.  Over 8,000 people responded, completing the survey. This was a remarkable result for a pilot project of this scale. Results from the PREM 2016 can be found in the 2016 Report below.

Since the PREM 2016, the survey has gone through a rigorous validation process, in partnership with the University of Hertfordshire and renal centres across Wales. This will inform the PREM in the future.

The Kidney PREM is led by The UK Kidney Association in partnership with Kidney Care UK.

If you need any more information about Kidney PREM please contact catherine.stannard@renalregistry.nhs.uk

Guidelines

NICE accredited clinical practice guidelines 

Available here

23rd Annual Report

Analyses about the care provided to patients at UK renal centres.

Read the report

UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report