Kidney Patient Reported Experience Measure

The Kidney PREM is a national annual survey of kidney patients

It aims to:

  • Help renal unit teams understand how patients feel about their experience of care

  • Show where improvement can be made

  • Give the UKRR a national picture of people’s experience of care.

Kidney PREM 2022

People with CKD were invited to take part from 1st October - 12th November 2022.

The annual Kidney PREM survey is now closed.  Please look out for the results from this year's data collection at your unit and on this website early next year.

Promoting the Kidney PREM

If you work in a kidney unit use the resources below to promote participation in the Kidney PREM amongst people treated for CKD at your unit.

Improving patient experience - the importance of local champions and stories

Learning from the Welsh Renal Network, and with the support of the Kidney Quality Improvement Partnership (KQuIP), we aim to provide some virtual Kidney PREM champion training and networking sessions for anyone involved in coordinating and engaging their staff and patient community in the Kidney PREM –  Contact KQuIP for more information on when and how to access these free online sessions.

Thanks to your support, the kidney community has made a real success of establishing an annual patient experience survey. But we know that the survey is just a means to an end, and it is how that information is used to improve patient care and experience locally that really matters.

We would love to hear about and share the many examples of changes that kidney teams have introduced as a result of the Kidney PREM, to engage with patients and improve care. By sharing all the activities your local kidney team, volunteers or patient groups have done in response to the Kidney PREM, we can really inspire more teams to learn from the innovation and improvements made right across the UK, improving the experience for people living with kidney disease.

Get in touch with the Kidney PREM team




 

The background to the PREM 

PREM 2016 came about through the Transforming Participation in Chronic Kidney Disease (TP-CKD) Programme and was one of a series of measures developed by the Measurement Workstream with the aim to routinely collect patient-reported outcomes and experience measures in CKD patients.

The TP-CKD Programme was initially working with 10 renal units. The PREM became something bigger, however, when the renal unit clinical directors agreed at their annual forum in 2016, that a national PREM survey would be of value, and that many would be keen to participate.

Of the 52 adult renal units in England, 39 units (75%) took part in the pilot PREM.  Over 8,000 people responded, completing the survey. This was a remarkable result for a pilot project of this scale. Results from the PREM 2016 can be found in the 2016 Report below.

Since the PREM 2016, the survey has gone through a rigorous validation process, in partnership with the University of Hertfordshire and renal centres across Wales. This will inform the PREM in the future.

The Kidney PREM is led by The UK Kidney Association in partnership with Kidney Care UK.

If you need any more information about Kidney PREM please contact catherine.stannard@renalregistry.nhs.uk

Guidelines

NICE accredited clinical practice guidelines 

Available here

24th Annual Report

Analyses about the care provided to patients at UK renal centres.

Read the report

UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report