BAPN/UKRR paediatric RRT mortality audit: what is the completeness and accuracy of UKRR data for causes of death?

Principal investigator: 
Grace McCall
Organisation: 
University of Manchester
Status: 
Active
Summary: 

Children with kidney failure requiring renal replacement therapy (RRT) have about a 30 times greater risk of dying compared with healthy children. Young children and those on dialysis are at greatest risk of death. In the UK, the Renal Registry (UKRR) collects information about children on long-term (greater than 90 days) RRT. Between 2000 and 2014, 99 children on RRT under 16 years old died. Very little is known about this group and the circumstances surrounding their deaths.

We intend to conduct an audit of paediatric patient deaths who received RRT between 2000 and 2015. Deceased RRT patients over this 16-year period will be identified and the clinical team responsible for their RRT management will be contacted by the UKRR. They will be asked to complete a proforma relating to circumstances around and cause of death. We will then report the number of deaths compared to the general child population. We will also examine the circumstances and causes of death for this group and compare these to existing literature. We hope this audit will inform clinicians, improve completeness of UKRR data and allow us to make sure coding systems used for children’s deaths are relevant and accurate.

Guidelines

NICE accredited clinical practice guidelines 

Available here

23rd Annual Report

Analyses about the care provided to patients at UK renal centres.

Read the report

UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report