The UK Renal Registry (UKRR) collates data from kidney centres and hospital laboratories to improve the care of patients with kidney disease in the UK.
Established by the Renal Association in 1995, the UKRR's data collection was originally limited to people on a kidney replacement therapy (KRT), i.e. with a kidney transplant or on dialysis. More recently, data collection was expanded to include cases of acute kidney injury (AKI) in primary and secondary care in England and cases of advanced CKD in secondary care, not on KRT, in England and Wales.
Data about children on dialysis or with a kidney transplant have been collated by the UKRR since 2009.
The UKRR team manages data collection, analysis and reporting on approximately 70,000 people on KRT and on about 500,000 people with an AKI each year.
The UKRR has an active and involved patient council.
Each year the UKRR publishes an annual report comprising kidney centre comparisons, attainment of the Renal Association audit standards, national averages and long-term trends.
In July 2020 the UKRR published its inaugural AKI report.
