September marks the launch of The LifeArc-KRUK Translational Centre for Rare Kidney Diseases (The UK Kidney Ecosystem)

The LifeArc-Kidney Research UK Translational Centre for Rare Kidney Diseases launches on 1 September for 5 years.

This exciting opportunity is to create a 'UK Kidney Ecosystem' using established infrastructure such as the UK Kidney Association national guidelines, strong data systems (RaDaR, UK Renal Registry) and biobanking facilities (NURTuRE) in a project that was co-designed by the kidney community.

Training future academics has been generously supported by Kidney Research UK. The specific project will strategically focus on the transformation of rare kidney diseases. Due to rare kidney diseases contributing to almost all kidney failure in childhood, it will begin within the highly collaborative 13 BAPN centres.

The aim is to create a positive research environment that is highly efficient, equitable and age-inclusive as a foundation to connect with other national initiatives and evolve into a trial accelerator platform. Researchers will provide 3 monthly updates and are holding two identical Zoom sessions on 18 and 20 September at 1-2pm to outline the specific project for colleagues predominantly working at the BAPN sites.

The links for the Zoom sessions have been sent via BAPN clinical leads however if anyone from the wider community would like to attend then please email louise.oni@liverpool.ac.uk to receive the link.

Read more about the LifeArc-Kidney Research UK Translational Centre for Rare Kidney Diseases here. 

Guidelines

NICE accredited clinical practice guidelines 

Available here

25th Annual Report

Analyses about the care provided to patients at UK renal centres.

Read the report

2022 UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report