CONSENSUS USE OF LIPID APHERESIS IN CHILDHOOD MULTI-DRUG RESISTANT IDIOPATHIC NEPHROTIC SYNDROME (INS)

There is also a short questionnaire to gather peoples views on the use of lipid apheresis and then specific centres will be asked to contribute data to pool the UK paediatric evidence.

This is the questionnaire link: https://redcap.link/LipidApheresis 

• Develop a National Consensus: Address the variations in treatment approaches across the country by sharing and consolidating clinical experiences.
• Share Experiences: Centres are invited to submit their experiences with lipid apheresis to contribute to the consensus-building process.
• Collaborative Effort: This workshop is part of the UK Kidney Ecosystem project, co-funded by LifeArc and Kidney Research UK, highlighting the collaborative effort to improve treatment outcomes for this vulnerable population.

Agenda and Speakers

• 10:00 - 10:15: Welcome and Purpose
  Introducing aspirations for a future trial accelerator for iNS
  Speaker: Louise Oni

• 10:15 - 10:30: Patient Stories
  Speaker: Caroline Jones

• 10:30 - 10:45: Single Centre Experience
  Speaker: Rodney Gilbert

• 10:45 - 11:00: Experience from Pooled Cases from Across the BAPN
  Speaker: Elin Davies

• 11:00 - 11:30: International Experience & the Literature
  Speaker: Dean Wallace

• 11:30 - 12:00: National Speciality Advisor View
  Speaker: Dal Holti

• 12:00 - 12:45: Lunch

• 12:45 - 13:00: Is it Possible to Stratify Patients with iNS to Select Those Who May Benefit from LA?
  Speaker: Moin Saleem

• 13:00 - 13:30: Is There Any Scientific Data to Support the Use of LA?
  Speaker: Gavin Welsh

• 13:30 - 13:50: Adult Experience/Views of LA

• 13:50 - 14:00: Summary
  Speaker: Louise Oni

• 14:00 - 14:30: Coffee Break

• 14:30 - 14:45: Introduction - Creating a Clinical Vignette
  Speaker: Louise Oni

• 14:45 - 15:45: Clinical Vignette and Achieving Consensus Group Work (All)

• 16:00: Close

Sponsorship

This event is proudly sponsored by the UK Kidney Ecosystem project, with co-funding from LifeArc and Kidney Research UK.

We look forward to your participation and valuable contributions to this important initiative.