Congenital Anomalies of the Kidneys and Urinary Tracts

To develop the CAKUT RaDaR registry
To develop best practice guidelines in regards to the management of CAKUT
To provide better patient information and support
To develop international collaborations to enable the above aims
To support research, in collaboration with international groups, into basic science, disease progression models and clinical trials

ERIC (https://eric.org.uk) is a national charity dedicated to improving children’s bowel and bladder health.

Kidney Care UK offer peer support through their Young Adult Kidney Group (YAKG) for those aged between 18-30 years (https://www.kidneycareuk.org/get-support/young-adult-kidney-group-yakg/).

RDG Lead(s)	Melanie Chan, Adult Nephrologist and Clinical Research Fellow, Imperial College London
Patient representative(s)	Lucy Wray, Patient/parent representative Hannah Thomson, Patient/parent representative
Other members	Jo Clothier, Paediatric Nephrologist, Evelina London Children’s Hospital Lucy Plumb, Paediatric Nephrologist and Clinical Lecturer, Bristol University Tanya Pankhurst, Adult Nephrologist, Queen Elizabeth Hospital, Birmingham Liam McCarthy, Paediatric Urologist, Birmingham Children's Hospital Ann Ratcliffe, Consultant Paediatrician, Taunton and Somerset NHS Trust Zainab Arslan, Paediatric Nephrologist, Great Ormond Street Hospital, London Nav Johal, Paediatric Urologist, Great Ormond Street Hospital, London Kevin Cao, Clinical Research Fellow, Institute of Child Health, UCL Shivaram Hegde, Paediatric Nephrologist, University Hospital of Wales, Cardiff Selena Curkovic, Paediatric Urologist, Noah’s Ark Children’s Hospital for Wales, Cardiff Hannah Rhodes, Paediatric Urologist, Noah’s Ark Children’s Hospital for Wales, Cardiff Sherry Masoud, Clinical Research Fellow, Cardiff University Manish Sinha, Paediatric Nephrologist, Evelina London Children’s Hospital Massimo Garriboli, Paediatric Urologist, Evelina London Children’s Hospital Yincent Tse, Paediatric Nephrologist, Great North Children’s Hospital, Newcastle Milan Gopal, Paediatric Urologist, Great North Children’s Hospital, Newcastle Caroline Platt, Paediatric Nephrologist, Bristol Royal Hospital for Children Karim Awad, Paediatric Urologist, Bristol Royal Hospital for Children Harriet Corbett, Paediatric Urologist, Alder Hey Children’s Hospital, Liverpool Madhavi Kakade, Paediatric Urologist, Leicester Royal Infirmary Ashwini Joshi, Paediatric Urologist, Barts Health NHS Trust Joyce Popoola, Adult Nephrologist, St George’s University Hospital, London Feilim Murphy , Paediatric Urologist, St George’s University Hospital, London Alun Williams, Paediatric Urologist, Nottingham University Hospitals NHS Trust Anna Radford, Paediatric Urologist, Hull University Teaching Hospitals NHS Trust and Leeds Children’s Hospital

None stated

Rare Disease Group

Aims of the Group

Current Activities

International Links

Patient Support Groups

Reports

Group Members

Disclosure of Conflicts of Interest