Data current at May 2025.
You may also wish to refer to:
Rare Disease Group | Cohort Size | Lab results via data feed | Patients recorded as being on RRT | Number of patients with Creatinine readings | Mean number of Creatinine readings per patient |
Alport Syndrome | 1200 | 901 | 434 | 991 | 87 |
APRT Deficiency | 10 | 7 | 2 | 9 | 75 |
Atypical Haemolytic Uraemic Syndrome | 317 | 257 | 156 | 266 | 165 |
Autosomal Dominant Polycystic Kidney Disease | 9065 | 7416 | 3674 | 7859 | 94 |
Autosomal Dominant Tubulointerstitial Kidney Disease (FUAN) | 268 | 210 | 120 | 218 | 98 |
Autosomal Recessive Polycystic Kidney Disease/Nephronophthisis | 275 | 224 | 122 | 244 | 117 |
BK Nephropathy | 153 | 143 | 140 | 143 | 384 |
Calciphylaxis | 74 | 60 | 62 | 60 | 281 |
CKD due to Genetic Factors in people of African ancestry | 636 | 232 | 139 | 231 | 148 |
CMV Post Transplant | 647 | 562 | 576 | 582 | 307 |
Congenital Anomalies of the Kidneys and Urinary Tracts | 384 | 237 | 61 | 282 | 76 |
Cystinosis | 196 | 168 | 110 | 173 | 166 |
Cystinuria | 537 | 352 | 10 | 393 | 29 |
Dent Disease and Lowe Syndrome | 78 | 45 | 17 | 50 | 74 |
Fabry Disease | 64 | 52 | 27 | 55 | 97 |
Fibromuscular Dysplasia | 100 | 55 | 0 | 59 | 14 |
HNF1b Mutations | 126 | 85 | 19 | 96 | 45 |
Hyperoxaluria | 145 | 116 | 43 | 119 | 87 |
Idiopathic Nephrotic Syndrome | 5020 | 3699 | 1200 | 4233 | 89 |
IgA Nephropathy | 5309 | 4434 | 2634 | 4587 | 124 |
Inherited Renal Cancer Syndromes | 426 | 20 | 4 | 82 | 20 |
Lupus Nephritis | 183 | 107 | 8 | 119 | 77 |
Membranoproliferative Glomerulonephritis | 1273 | 1024 | 640 | 1168 | 138 |
Membranous Nephropathy | 2950 | 2233 | 607 | 2396 | 84 |
Mitochondrial Renal Disease | 6 | 2 | 0 | 2 | 79 |
Monoclonal Gammopathy of Renal Significance | 267 | 201 | 113 | 205 | 136 |
Pregnancy | 812 | 633 | 253 | 715 | 110 |
Pure Red Cell Aplasia | 9 | 6 | 6 | 6 | 240 |
Retroperitoneal Fibrosis | 171 | 115 | 22 | 133 | 73 |
STEC-associated HUS | 193 | 118 | 83 | 127 | 57 |
Tuberous Sclerosis | 301 | 210 | 22 | 219 | 43 |
Tubulopathy | 467 | 290 | 17 | 340 | 44 |
Vasculitis | 5829 | 3974 | 1243 | 4300 | 92 |