The National Registry of Rare Kidney Diseases (RaDaR) is a UK Kidney Association initiative designed to pull together information from patients with certain rare kidney diseases.
As of September 2023, there are 31,473 patients recruited into RaDaR from 110 sites across the UK. It is the largest rare kidney disease registry in the world.
The current top recruiting centres (September 2023) are for adults London - Royal Free Hospital with 1,425 patients and for paediatric Birmingham Children’s Hospital with 630 patients.
The newest centre is Rhyl - Ysbyty Glan Clwyd in Wales.
To make sure our data is accurate and up-to-date, we are working closely with kidney centres and laboratories around the UK. We have added older blood and urine test results to the RaDaR database from hospitals that have given us a data file of historical back data.
We are also working with centres to get important genetic test results and specific blood marker results. These include Cambridge, London Guy's St Thomas, and Sheffield. Others in the future include Newcastle and Bristol.