About RaDaR

The National Registry of Rare Kidney Diseases (RaDaR) is a UK Kidney Association initiative designed to pull together information from patients with certain rare kidney diseases.

With over 33,000 patients recruited from 109 sites across the UK, it is the largest rare kidney disease registry in the world

To make sure our data is accurate and up-to-date, we are working closely with kidney centres and laboratories around the UK. To enrich our data we are also working with centres to get important genetic test results and specific blood marker results. 

The UK's National Registry of Rare Kidney Diseases is a powerful source of real-world data that can help improve understanding of rare kidney conditions and provide information for research and clinical trials. 

RaDaR, originally funded by the Medical Research Council, Kidney Research UK, Kidney Care UK and the Polycystic Kidney Disease Charity, is now managed and funded by the UK Kidney Association.

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NICE accredited clinical practice guidelines 

Available here

25th Annual Report

Analyses about the care provided to patients at UK renal centres.

Read the report

2022 UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report