For a step-by-step guide to recruitment to RaDaR please visit the Recruiting Patients page.
Inclusion Criteria
For a full breakdown of each condition’s inclusion and exclusion criteria please click here.
For further information about each condition please visit the relevant Clinician pages or contact the appropriate Rare Disease Group.
Important: South West – Central Bristol Research Ethics Committee approved a substantial amendment to RaDaR in October 2020 (REC 19/SW/0173). The new study documents are listed below.
RaDaR Protocol
***All Word versions documents click here
RaDaR Information Sheets
- Children's Patient Information Sheet v7 13.08.2020
- Young Person Patient Information Sheet v11 13.08.2020
- Parent Guardian Information Sheet v10 13.08.2020
- Adult Patient Information Sheet v11 13.08.2020
RaDaR Consent Forms
- Young Person Assent Form v6 13.08.2020
- Parent Guardian Consent Form v9 13.08.2020
- Adult Patient Consent Form v9 13.08.2020
RaDaR Letters
- Child Adult Consenting Letter v1 13.08.2020
- Parent Guardian Consenting Letter_v1 13.08.2020
- Adult Consenting letter v1 13.08.2020
Please note: all of the information sheets and consent forms are generic and should be printed out on each trust’s headed paper before use.
NephroS consent documents can be found below:
NephroS Protocol
NephroS Patient Information Sheets
- NephroS Adult PIS v5 28-11-2019
- NephroS Adolescent PIS v8 28-11-2019
- NephroS Children Parent Guardian PIS v11 28-11-2019
NephroS Consent Forms
- NephroS Adult Consent Form v2.1 23-11-2016
- NephroS Children Assent Form v2.1 23-11-2016
- NephroS Children Consent Form Parents v5.1 23-11-2016
Letters
- NephroS Adult Pt Letter of Invitation v3 28-11-2019
- NephroS Children Letter of Invitation v4 28-11-2019
