under development
Rare Disease Group
- To develop the CAKUT RaDaR registry
- To develop best practice guidelines in regards to the management of CAKUT
- To provide better patient information and support
- To develop international collaborations to enable the above aims
- To support research, in collaboration with international groups, into basic science, disease progression models and clinical trials
ERIC (https://eric.org.uk) is a national charity dedicated to improving children’s bowel and bladder health.
Kidney Care UK offer peer support through their Young Adult Kidney Group (YAKG) for those aged between 18-30 years (https://www.kidneycareuk.org/get-support/young-adult-kidney-group-yakg/).
- Melanie Chan, Adult Nephrologist and Clinical Research Fellow, Imperial College London
- Jo Clothier, Paediatric Nephrologist, Evelina London Children’s Hospital
- Lucy Plumb, Paediatric Nephrologist and Clinical Lecturer, Bristol University
- Lucy Wray, Patient/parent representative
- Hannah Thomson, Patient/parent representative
- Tanya Pankhurst, Adult Nephrologist, Queen Elizabeth Hospital, Birmingham
- Liam McCarthy, Paediatric Urologist, Birmingham Children's Hospital
- Ann Ratcliffe, Consultant Paediatrician, Taunton and Somerset NHS Trust
- Zainab Arslan, Paediatric Nephrologist, Great Ormond Street Hospital, London
- Nav Johal, Paediatric Urologist, Great Ormond Street Hospital, London
- Kevin Cao, Clinical Research Fellow, Institute of Child Health, UCL
- Shivaram Hegde, Paediatric Nephrologist, University Hospital of Wales, Cardiff
- Selena Curkovic, Paediatric Urologist, Noah’s Ark Children’s Hospital for Wales, Cardiff
- Hannah Rhodes, Paediatric Urologist, Noah’s Ark Children’s Hospital for Wales, Cardiff
- Sherry Masoud, Clinical Research Fellow, Cardiff University
- Manish Sinha, Paediatric Nephrologist, Evelina London Children’s Hospital
- Massimo Garriboli, Paediatric Urologist, Evelina London Children’s Hospital
- Yincent Tse, Paediatric Nephrologist, Great North Children’s Hospital, Newcastle
- Milan Gopal, Paediatric Urologist, Great North Children’s Hospital, Newcastle
- Caroline Platt, Paediatric Nephrologist, Bristol Royal Hospital for Children
- Karim Awad, Paediatric Urologist, Bristol Royal Hospital for Children
- Harriet Corbett, Paediatric Urologist, Alder Hey Children’s Hospital, Liverpool
- Madhavi Kakade, Paediatric Urologist, Leicester Royal Infirmary
- Ashwini Joshi, Paediatric Urologist, Barts Health NHS Trust
- Joyce Popoola, Adult Nephrologist, St George’s University Hospital, London
- Feilim Murphy , Paediatric Urologist, St George’s University Hospital, London
- Alun Williams, Paediatric Urologist, Nottingham University Hospitals NHS Trust
- Anna Radford, Paediatric Urologist, Hull University Teaching Hospitals NHS Trust and Leeds Children’s Hospital
None stated
