Congenital Anomalies of the Kidneys and Urinary Tracts

under development

Rare Disease Group

  • To develop the CAKUT RaDaR registry
  • To develop best practice guidelines in regards to the management of CAKUT
  • To provide better patient information and support
  • To develop international collaborations to enable the above aims
  • To support research, in collaboration with international groups, into basic science, disease progression models and clinical trials

ERIC ( is a national charity dedicated to improving children’s bowel and bladder health.


Kidney Care UK offer peer support through their Young Adult Kidney Group (YAKG) for those aged between 18-30 years (

  • Melanie Chan, Adult Nephrologist and Clinical Research Fellow, Imperial College London
  • Jo Clothier, Paediatric Nephrologist, Evelina London Children’s Hospital           
  • Lucy Plumb, Paediatric Nephrologist and Clinical Lecturer, Bristol University
  • Lucy Wray, Patient/parent representative
  • Hannah Thomson, Patient/parent representative
  • Tanya Pankhurst, Adult Nephrologist, Queen Elizabeth Hospital, Birmingham
  • Liam McCarthy, Paediatric Urologist, Birmingham Children's Hospital             
  • Ann Ratcliffe, Consultant Paediatrician, Taunton and Somerset NHS Trust
  • Zainab Arslan, Paediatric Nephrologist, Great Ormond Street Hospital, London
  • Nav Johal, Paediatric Urologist, Great Ormond Street Hospital, London             
  • Kevin Cao, Clinical Research Fellow, Institute of Child Health, UCL
  • Shivaram Hegde, Paediatric Nephrologist, University Hospital of Wales, Cardiff
  • Selena Curkovic, Paediatric Urologist, Noah’s Ark Children’s Hospital for Wales, Cardiff        
  • Hannah Rhodes, Paediatric Urologist, Noah’s Ark Children’s Hospital for Wales, Cardiff
  • Sherry Masoud, Clinical Research Fellow, Cardiff University
  • Manish Sinha, Paediatric Nephrologist, Evelina London Children’s Hospital
  • Massimo Garriboli, Paediatric Urologist, Evelina London Children’s Hospital                          
  • Yincent Tse, Paediatric Nephrologist, Great North Children’s Hospital, Newcastle
  • Milan Gopal, Paediatric Urologist, Great North Children’s Hospital, Newcastle       
  • Caroline Platt, Paediatric Nephrologist, Bristol Royal Hospital for Children
  • Karim Awad, Paediatric Urologist, Bristol Royal Hospital for Children             
  • Harriet Corbett, Paediatric Urologist, Alder Hey Children’s Hospital, Liverpool         
  • Madhavi Kakade, Paediatric Urologist, Leicester Royal Infirmary     
  • Ashwini Joshi, Paediatric Urologist, Barts Health NHS Trust
  • Joyce Popoola, Adult Nephrologist, St George’s University Hospital, London
  • Feilim Murphy , Paediatric Urologist, St George’s University Hospital, London             
  • Alun Williams, Paediatric Urologist, Nottingham University Hospitals NHS Trust        
  • Anna Radford, Paediatric Urologist, Hull University Teaching Hospitals NHS Trust and Leeds Children’s Hospital   


NICE accredited clinical practice guidelines 

Available here

25th Annual Report

Analyses about the care provided to patients at UK renal centres.

Read the report

2022 UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report