RaDaR Patient Representative meeting, Friday 12th July 2024, London and online

PDFs of presentations:

Getting new therapies: the rare disease problem - Danny Gale, RaDaR Director

Fertility, Reproduction, Educational and Developmental Attainments in offspring: the FREDA study - Hannah Beckwith, King's College London

Kidney Patient Reported Experience Measure - Leeanne Lockley, KQIP

Developing a rare disease support group - Hannah Harvey, Beacon for Rare Diseases