Tuberous Sclerosis

Clinician Information

For details on the diagnosis of Tuberous Sclerosis patients please see:

Northrup, H., Krueger, D. A. & International Tuberous Sclerosis Complex Consensus Group 2013. Tuberous sclerosis complex diagnostic criteria update: recommendations of the 2012 international tuberous sclerosis complex consensus conference. Pediatr Neurol, 49, 243-54.


For details of the monitoring and management of Tuberous Sclerosis patients please see:

Krueger, D. A., Northrup, H., & International Tuberous Sclerosis Compelx Consensus Group 2013. Tuberous Sclerosis Complex Surveillance and Management: Recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference. Pediatr Neurol, 49, 255-265


There is also a BMJ learning module on the diagnosis and management of Tuberous Sclerosis, funded by, and developed in association with, the Tuberous Sclerosis Association


NICE accredited clinical practice guidelines 

Available here

25th Annual Report

Analyses about the care provided to patients at UK renal centres.

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2022 UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

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