Rare Disease Group
- To increase awareness of Pure Red Cell Aplasia (PRCA).
- To streamline the diagnostic process.
- To investigate and implement measures to reduce the incidence of the disease.
- To empower affected patients in seeking help and support.
- To establish international collaborations to promote research into the causes and management of the disease.
The date of the first PRCA patient information and support meeting will be advertised here soon.
The RDG is communicating with several international bodies with a view to expand its activities internationaly.
A Facebook group for ESA Induced Pure Red Aplasia has been established.
RDG Lead(s) |
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Patient representative(s) |
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Other members |
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None reported