Data current at November 2024.

You may also wish to refer to:

The RaDaR data dictionary

How to include RaDaR data in your research

Rare Disease Cohort

Cohort Size

Lab results via data feed Patients recorded as being on RRT No of patients with Creatinine readings Mean no of Creatinine readings per patient
Alport Syndrome 1153 871 427 940 80
APRT Deficiency 10 6 2 9 73
Atypical Haemolytic Uraemic Syndrome 315 254 156 263 154
Autosomal Dominant Polycystic Kidney Disease 8885 7246 3657 7694 86
Autosomal Dominant Tubulointerstitial Kidney Disease (FUAN) 262 205 119 213 87
Autosomal Recessive Polycystic Kidney Disease/Nephronophthisis 270 218 122 239 111
BK Nephropathy 149 139 136 139 323
Calciphylaxis 72 58 59 58 243
CKD due to Genetic Factors in people of African ancestry 578 194 127 192 126
CMV Post Transplant 26 22 21 23 296
Congenital Anomalies of the Kidneys and Urinary Tracts 233 123 40 160 72
Cystinosis 188 162 107 167 150
Cystinuria 529 348 10 389 28
Dent Disease and Lowe Syndrome 73 41 17 47 72
Fabry Disease 62 50 27 53 83
Fibromuscular Dysplasia 80 44 0 43 17
HNF1b Mutations 119 76 16 84 43
Hyperoxaluria 138 112 43 116 85
Idiopathic Nephrotic Syndrome 4867 3567 1194 4110 83
IgA Nephropathy 5134 4295 2607 4439 111
Inherited Renal Cancer Syndromes 405 17 4 79 18
Lupus Nephritis 103 48 3 59 52
Membranoproliferative Glomerulonephritis 1232 970 630 1058 132
Membranous Nephropathy 2847 2173 601 2326 78
Mitochondrial Renal Disease 6 2 0 2 79
Monoclonal Gammopathy of Renal Significance 252 186 111 191 124
Pregnancy 802 624 250 706 97
Pure Red Cell Aplasia 9 6 6 6 238
Retroperitoneal Fibrosis 163 106 22 124 70
STEC-associated HUS 189 115 83 124 55
Tuberous Sclerosis 299 207 22 216 39
Tubulopathy 426 254 17 307 43
Vasculitis 5650 3818 1239 4138 86